Brain Metastasis

[Pitchperfec]

We found out yesterday mums OC has metastasised to the brain. We don’t have a treatment plan yet although radiotherapy has been mentioned. Does anyone have any experience, knowledge or advice for this diagnosis. I’m devastated for my mum who has spent the last 3 years since diagnosis in relatively good health despite 2 recurrences.

[Pawpaw22]

Sorry to hear your Mum's news. Especially hard since she has been feeling relatively reasonable. This is a tough disease.

[mrstadpole]

I had a lesion removed from my cerebellum in March.I then had a one off treatment of Gamma knife surgery( a type of radiotherapy) afterwards.I had a MRI recently and it was okay.My surgeon said he had removed the lesion but I think it depends on where in the brain the tumor is situated.

[Pitchperfec in reply to mrstadpole]

Hi there, thank you for taking the time to reply. Are you in the UK? My mum has been referred to Neurosurgeons at Southampton Hospital. They will have their MDT meeting on Tuesday to discuss treatment. Can I ask what symptoms you had? My mum had been feeling very slightly unbalanced for a while but it became much worse almost overnight just over a week ago. Her speech is also affected, she sounds very slightly drunk but it wouldn’t be noticeable to anyone who didn’t know her. We knew she was having a recurrence due to rising CA125 and abdominal scan results but because she didn’t have symptoms she was on watch and wait before starting chemo again.

[Goodgirl98]

I am so sorry to hear that. Hope you get a treatment plan soon. I can understand this wait is horrific. How did it get identified ? Through any regular scan/test or due to symptoms your mom had?

[Pitchperfec in reply to Goodgirl98]

Hi, due to worsening symptoms her oncologist requested a CT scan of the head.

[Goodgirl98 in reply to Pitchperfec]

Thanks for responding. Wishing your mom the best of treatment and recovery from this. Stay strong.