Not wanting to be divisive about ovarian cancer,( I never thought I would ever write that sentence in my lifetime) however I was wondering how many women using this site have a diagnosis of carcinosarcoma?
I have been told it is "rare' and that 's why there is little research to date, and there are not enough numbers to do any research currently.
Many of the trials specifically exclude carcinosarcoma
I wonder if it is worth trying to work out how we would find out how many women nationally have this diagnosis and use this as a basis to at least see if we could have a standard for treatment, and provided a pool for research. I know my consultant has never dealt with anyone with this before yet there is expertise around in other areas.
If people are interested we could ask Ovacome to help us in this direction
What do u think?
I would be happy to collate names/nos of women