Looking for good news please

[Pixiepurple]

Hello lovely ladies,

I have a scan on Wednesday, 7 months since last chemo session. I'm feeling good only worry is lymph node under my arm is swollen & I look 6 months pregnant again.

If they tell me it's back ( this will be my first reoccurrence) I will not be too shocked, but would love to hear some good news stories of ladies who have had 1st reoccurrence this early.

Again I could be totally paranoid. I hate this time waiting for the scan waiting for the results yuck.

Thanks again everyone xx

[Lyndy]

Hi Pixiepurple

You should be able to have platinum based chemo if this is a recurrence- so that’s good! Did you get any maintenance treatment after your chemo? If not then it would be good to get that in place for after another line of chemo.

But of course it might not be back..could be something else entirely. Waiting is so hard-take good care of yourself xx

[Pixiepurple in reply to Lyndy]

It's good to know that if it has come back there is something they can give me. Yes I am on Avastin. Thank you so much for the reply xx

[delia2]

Hi. I had a recurrence 8 months after frontline, just when I was getting back to normal. I was treated with carbo and doxil and then Olaparib for three years. Then one year of no maintenance and I am now having chemo again. Good luck. I hope yours isn’t back!

[Pixiepurple in reply to delia2]

Thank you Delia2 wow that is such great news that treatment is working so well for you. I hope the chemo is doing its job. Best of luck & thank you for the reply xx

[candyapplegrey]

I had a recurrence after c. 4 months but I have clear cell. Had another op then radiotherapy. Not too bad then was free until 2024. Never been put on maintenance drugs - hospital has bizarre criteria. Do you think you have ascites? I've never had that but it's common with OC. Take care. C xx

[Pixiepurple in reply to candyapplegrey]

Hi Candyapple,

I have had ascites drained 3 times, it's yuck. It's strange the swelling this time feels different, not as sore, but maybe I'm just getting used to it. That must have been some shock to have a reassurance after 4 months. Best of luck on your journey xx thank you for your reply. What treatment are you on now?

[Leniko]

saying prayers that it’s not a recurrence.

[Pixiepurple in reply to Leniko]

Hi Leniko thank you so much x

[Tulips66]

Hi, hopefully you don't have a recurrence 🙏but if you have don't worry I am sure you will have a few options. I finished my first chemo in July 2019 & continued on Avastin till Sept 2020 when it was unfortunately back in my groin. I had more surgery in the Dec & started chemo again March 2021. I was started on Carboplatin/Gemcitabine on week one & was supposed to have the Gemcitabine on its own on 2 weeks later but it played havoc with my low blood cells. They decided to give me the Carboplatin/ Gemcitabine every 3 weeks only & this worked really well. After 6 of these they gave me the Gemcitabine as a maintenance & it reduced all the nodes . I was on it till Nov 2022 & the only reason they took me off it was you can only have so many. Then Jan 2023 I started on a part inhibitor called Niraparib because I am Brca 1 & 2 negative but there are a few other ones of the same family if you happen to Brca positive . It took a bit of tweaking & because of my bloods I ended up being able to take only one tablet a day . I am also in Ireland so all these should be available to you . I am very surprised & can't understand why you weren't given a CT scan every 3 months after you finished chemo which I thought that was the norm . I had a CT scan the day after I finished my chemo in 2019 & again every 3 /4 months later. The only reason it might have sometimes been the gap of 4 months is ,if there was a backlog in the Radiology dept . Maybe that's a question you could ask your oncologist why such a long gap ? I hope you won't need all this information after all, but it gives you an idea of what's available if you do . I wish you all the best & hopefully you are worrying for nothing .!!!💕

[Pixiepurple in reply to Tulips66]

Hi Tulips66,

Sorry my message reads a bit incorrect. Chemo finished 7 months ago. I had a scan in Feb & another yesterday. Debulking surgery was done in Nov. I am also BRAC neg. Thank you so much for the info. I am meeting my oncologist soon for results so will know more then. I would love to make it til Oct before a reoccurrence. But what will be, will be.

My chemo started off with carbo/ paclitaxel but had a severe reaction to the paclitaxel & ended up in hospital for 4 days. The next 5 sessions were carbo & cyclophosphamide. It wasn't too bad. I was lucky. Well best of luck to you going forward. I'm attending Vincent's.

[Tulips66 in reply to Pixiepurple]

Sorry it was probably me who read your post wrong , I was in having chemo on Tues so my brain is still sizzled 🙈that's my excuse anyway. Are you attending Vincents public in Dublin?

[Pixiepurple in reply to Tulips66]

Hey Tulips66, It so wrecks your way of thinking doesn't it. Hope your getting rest & looking after yourself. Yes Vincent's Dublin, public patient.

[Tulips66]

Would you believe Vincents is also the hospital I attend 🙈. We have probably bumped into each other there now & again. Enjoy the rare sunshine when we get it, take care 💐

[Pixiepurple in reply to Tulips66]

Hey. Isn't that gas small world. We must have bumped into each other for sure. Yes I do think we only have the sunshine til Sunday.