Caelyx/ carboplatin side effect retention of fluids

[Pumpkininja]

Dearest,Hope all good.

Since i was in the hospital, 11 days for a bacteria in my porth-a-cath, my body did a huge retention of liquids in my feet and legs.

Extremely painful.

Anyone else suffer the same?

Did your doctor have reservation to prescribe lasix instead of spironolactone due to the potassium decrease?

Any information or advise to get ride of the fluids are very much welcome 🙏🏼

( home remedies, anything.Im trying everything)

Thank you so much 🙏🏼

Warm regards

[OvacomeSupport Partner My Ovacome Team]

Dear Pumpkininja

Thank you for your post. I'm sure our members will be along to support you and share their experiences. I just wanted to encourage you to discuss the painful water retention you are experiencing with your medical team or GP.

It sounds from your post that you have discussed diuretics with your doctor, but if you have any questions or feel your fluid retention is not improving please do contact them again.

I hope they will be able to advise you so you can have some relief from this soon.

There is also some general advice on oedema (swelling in the ankles, feet or legs) on the NHS website here: nhs.uk/conditions/oedema/

Best wishes

Anna

Ovacome Support

[Pumpkininja in reply to OvacomeSupport]

Dear Anna, thank you so much for your kind support. I will for sure.Warm regards

Claudia

[Rufusdusol]

I had sepsis after first round of chemo and was in hospital for 12 days..came home with very little strength and mobility - hips legs and feet now full of fluid. On low dose of water tablets but can hardly walk- it’s affecting my mental health. Have tried dandelion root powder but nothing is working. Have asked for lymphatic drainage massage, so am waiting to see if they can help with that. Can’t move in bed at night, can’t use stairs, using commode and zimmer frame. It’s getting me down.

[Pumpkininja in reply to Rufusdusol]

Dear Rufusdusol , same as me! Hope you get well soon.

Warm regards

[Pumpkininja in reply to Rufusdusol]

Hello Rufusdusol hope you are a bite better.I'm still quite bad.the water decreased a bite with the pills but I'm still swollen and is so painful...

So you got this after the bacteria! You were in antibiotics at home also for 7 days?

Tomorrow is my last day of antibiotics.

Crossing fingers things will get better after tomorrow when I finish the antibiotics for the bacteria.

I just call to book a lymphodrainage massage but I'm trying they come to my place as is so difficult for me to walk now.

At night very difficult to sleep, anytime of the day very difficult and I work like this.

Wish you the Best xxx

[Rufusdusol in reply to Pumpkininja]

Hi Pumpkininja

I have been off the antibiotics for 3 weeks but still the oedema continues. I am waiting for a referral to lymphodema team, but not sure how long that will take. Walking is only happening for me with a zimmer frame and the fluid and heaviness makes me breathless.

It’s a gorgeous spring morning out there and I can’t get out and enjoy it - it’s really affecting my mental health now.

I hope you find some relief soon.

Best wishes

Sam x

[Pumpkininja in reply to Rufusdusol]

Oh my dear I understand you so well.Keep strong.

Look try put cold creams on your legs

Star balm - in cream or spray it helps a bite also compression socks.

Try to walk, move and avoid sodium even if difficult.

Courage dear

All the best xxx

[Rufusdusol]

Dear Pumpkinja, I am new to this forum so apologies for not addressing you in my reply. Its so difficult to get comfortable - I use an anti sickness to help me get to sleep and get about 3 hours until I wake with aching legs and then just can’t get my pillows right - or rather my husband tries for me but it’s difficult. I then lie awake and stare into the candle on our oil burner visualising this dis- ease leaving my body until I fall asleep again for a little while. How do you sleep? xxx