Omentum cancer

[Hmegson]

My mum was diagnosed with omentum cancer stage 3.

She was told she had a very good chance of surgery as hadn't gone any further.

She was booked in for surgery in 4 weeks.

There has been no more scans just the original.one. But Today after her 2nd set of 3 chemo we were told it was everywhere E.g spleen, liver, bowel etc

I am annoyed that they did not tell us this originally has anyone else had this?

They have said they can keep doing chemo and doesn't need surgery from r there to be a good outlook.

Has anyone else had this and and how has anyone just had the chemo to try and maintain it? Any advice would be greatly appreciated

[Lyndy]

Sorry to hear your Mum is in this situation. I also had chemo first and they operated after 4 cycles. The chemo reduced everything enough for them to get everything out. I have been told they don't like to operate when they can only get a partial result because this can spread the cancer further. I would suggest asking for a further explanation from them about why the advice has changed xx

[June1960 in reply to Lyndy]

Hi guys, chemo and surgery are not the answers. Cancer will always come back in some other place.

Cancer cells are still present in your body

So what I doing now is going on juce and natural diet. Getting advise and set up plan with nutritionist how to bust up my immune system to fight cancer. Chemo will kill you in the end because it wipes out your fighter immune system . I know it's sound scarry but I said NO to toxic treatment

[Cropcrop in reply to June1960]

This really isn't helpful sorry 😐

[airfemale in reply to June1960]

June1960 I can't believe you would say these things to a scared person. Your choice is your decision but allow everyone to make their decisions without preaching. As Cropcrop said this is not helpful.?

[Katmal-UK in reply to June1960]

Hi June. I think everyone is entitled to their opinion but not sure your response on this occasion is helpful. It will be interesting to know in the future if your choice has worked for you. I wish you well xx

If you want to assert a truth first make sure its not just an opinion you desperately want to be true.

[IrishMollyO in reply to June1960]

June

That is a very upsetting reply to a fellow sufferer. You may make your own decisions not to follow the conventional medicine route but please don't mock the vulnerable patients who do !

[Tesla_7US]

Hmegson, If there's been only one scan that showed no disease has spread, then what made them "decide" it has now spread to other organs? This does not add up. If they have "misinterpreted" the "one and only original scan" they need to "fess up".

At this point, she has larger disease to kill or remove. There is plenty of data to support having 1) primary induction chemo to reduce tumor burden 2) followed by aggressive debulking surgery with the goal of R-0 meaning no visible residual disease 3) followed by Intraperitoneal chemo directly into her abdomen via implanted abdominal port a catheter 4) possibly then followed by dose dense chemo through a port a cath in her chest.

From my research I have discovered the greatest chance for survival at 3C, serous hi grade epithelial includes BOTH chemo and radical hysterectomy, not simply chemo. I'm not a doctor, but I keep running across this information for my own diagnosis.

Please get a second opinion, especially since doubt has been cast over the reliability of the original scan. FYI, there are thousands of studies regarding OVCA, PPC in different populations and age groups. Here's just one that may help you to ask the right questions for your mother. journal.frontiersin.org/art...

[Naimish in reply to Tesla_7US]

That was brilliant Tesla.

[Naimish in reply to Naimish]

However in my wife's case PPC 3C, they first did the cyto reduction followed by six cycles of chemo IV and IP which took her into complete remission . That she had a recurrence more than a year later is another story altogether.

Naimish

[Tesla_7US in reply to Naimish]

Naimish, how is Gauri doing?

[IrishMollyO in reply to Tesla_7US]

Hi Tesla

I just read the study you attached and it confirmed my suspicions. Despite the fact that OC and PPC are mostly a disease of older ladies they are discriminated against because of their age. I find this really upsetting and a scandal that should be more publicised. I'm sure it's not practiced in all hospitals but it shouldn't happen at all.

XXX

[ellseybellsey]

I was also the same chemo first then surgery, after surgery I had a further 3 chemo. I was told Ned last September and enjoying life at the moment.

Hugs Ellsey xx

[judyved-US]

Regarding the discrepancy in the scans....I was diagnosed with oc due to the rise in ca125 and the cancer cells present in the pleural fluid. The fluid was taking up lung space and I was short of breath. ( my only symptom).All my scans....ct, mri,pet.....showed NOTHING. They only saw what was there after opening me up.....and I was full of cancer, including the omentum.. my Dr said that's probably why there was nothing on the scans....the omentum was hiding everything else.

Everyone is different. I had the surgery first then chemo. I had a wonderful 27 month remission and have just had my first recurrence.

There is a lot of hope, so don't lose heart. I wish your Mom the very best and God bless you for supporting her!

Judyved