Ascities advice

[Mickie1409]

Hi I’m currently under gynaecologist for a 22 cm cyst I had my appointment with in March he was reassuring as he said that what he can see although separated it looked smooth which is a good thing I had no symptoms apart from distant belly up til that point fast forward 3 weeks and two failed mri scans one was horrible experience and I couldn’t fit in machine number 2 my servere claustrophobia to the point where I have had nightmares now having ct scan just waiting for appointment . Went to my gp last Friday as I had what is referred to as air hunger he put it down to anxiety and persribed me diazepam which I didn’t take cause I thought it might compromise my respiratory system so Saturday I end up in a and e they also think it’s anxiety although I left with out seen doctor my oxygen levels were 99 and my bloods were ok my blood pressure was ok too I have no pain in my abdomen whatsoever and I do not feel the need to go toilet although belly feels heavy I also have 9 cm fibroid i did take 2 diazepam I think they helped but I’m on Mirtizapine and wanted to get back to taking that I have lost my appetite and I am burping a lot and I’m still getting air hunger episodes I’m just wondering if anyone has any experience of Ascities were they ok and what does it feel like I’m just very scared all of the time I can’t think about this situation without crying I try to do other things but nothing I do distracts me and to be honest I am so much more aware of my breathing I had both ultra and transvaginal scans on 28 th of feb. Thankyou in advance xxx

[Hidden]

Hi MickieMy mental health went through the roof when I was diagnosed.

On first hearing that they had found a cyst, mine was 15cm, I withdrew from everything, only would see family and cried constantly.

I've now had full debulking surgery and 3 rounds of chemo. Once I received the plan of action and knew what was happening my mental health improved and I became more positive.

Try not to over think things, as the doc said the mass feels smooth which is a good sign. Take one day at a time and be kind to yourself xxxx

[Atai]

hey Mickie… it’s very natural to feel anxious, so don’t feel bad about that, and please call the helpline here, they are AMAZING and reassured me when I called.

When is your CT scan? They are much easier than MRI, as much more open and less machinery, so you’ll manage that ok . Xx

[Mickie1409]

thank you for replying it is a help I’m glad I found this site as everyone despite their own battles are so kind and inspiring x the ct scan has not been booked yet they said they would send a letter although as much as I don’t want to and the thought terrifies me I will get hold of my gynaecologist to let him know about these symptoms my logical side knows that they can’t help or put a plan in place unless they know what’s going on xx it’s just so scary x

[Atai in reply to Mickie1409]

yes it’s hard to prepare yourself for scans when you’re claustrophobic, though it is the only way to get a certain diagnosis and the best treatment plan, so , can you look into getting some anxiety meds or similar from either the GP or the consultant ahead of the CT?

Call the helpline here too they’ll have loads of advice!

The CT is like a giant polo mint! It has a long bed in the middle, and takes maybe 3/4 minutes to scan you. If you need the contrast dye, you’ll have a cannula put in first, then you sit and rest for 20 minutes and then get driven back home. I much prefer it to MRI too

Just try to think that, however worrying, all these processes are here to help you, and to heal you. Best of luck xxx

[Marieck]

Hi,

I had ascites five weeks after surgery. I had no idea what it was but after five weeks i felt i had no interest in eating and was very swollen and bloated. Then one night i woke up with my sheets soaked with a white liquid and it continued to just leak out of me for days. I guess its a very rare reaction but it does happen. I went to the doctor and they did a scan then drained the liquid and tested it for cancer. It was negative and i finally started to feel much better once it was gone. it was scary but I had a good outcome. hope this helps not sure if you had a specific question all i can do is tell you my experience.

good luck with everything

[Mickie1409 in reply to Marieck]

hi thankyou so much for replying it means a lot and that must of been awful for you I quash you well with your journey xxx

[Mickie1409 in reply to Mickie1409]

sorry that is supposed to say I wish you well xxx