It's back!

[Ova-whelmed]

I finished Avastin (after pac/carbo/surgery) in Dec 21 and I have just been told that the cancer has returned. I will be starting caelyx/carbo .I'm a bit terrified this time I think it's going to be rough I tolerated carbo/Pac well.I'm feeling a bit defeated by it all.

[Inguc_is]

my mom will have 3rd recurrance now as her ca is up from 40 to 91 in 2 month :(((

[Lookingahead]

hi , it is always an awful feeling when the cancer returns and you have to start New Testament . I had Carbo/Caelyx earlier this year and found it reasonably easy to deal with . You need to mousturise your feet whilst on Caelyx and my onc recommended Udder Cream and that worked really well . I used it every night smothering my feet in it and then wearing thin cotton socks — also during the day . It can make your mouth sore but again you use mouthwash and also Iglu gel on any ulcers . It took me 3 treatments to learn all this ! I suggest you start the above from day 1 and you will be fine . I wasn’t as tired and didn’t lose my hair that time which was great . I had the cold cap . Best of luck and of course, try not to worry as stress is so bad for us ( easy for me to say that as I often wake in a panic in the night!!!!! )

🙏❤️

[Lookingahead in reply to Lookingahead]

that should have said — start new treatment !!!

[Ova-whelmed in reply to Lookingahead]

Lookingahead Thankou for your reply I will make sure I have the cream in! I needed to hear your reply today I was feeling quite low and scared. I love your name x

[Ova-whelmed in reply to Lookingahead]

I was think 'New Testament' might work I feel like I could write a book of revelations!

[Caleda4]

Hi, I had carbo/ caelyx earlier this year,and found it easier than,taxol. My hair thinned a bit but not so as it was noticeable. I used salt water for ulcers,alternately with mouthwash. which worked for me. E45 was recommended for soles of feet and hands,but fortunately I did not have any skin peeling.I hope things go well for you.

[AuntyOrange]

BUGGER!!! I'm so sorry to hear that. I've been on Avastin for maintenance since finishing Cayl/carbo in March this year. My onc said he will keep me on it until it stops working. I'm tolerating it well but not sure how long it will last. Recurrence is always on my mind but I just bless every day that I wake up and see the sky outside my window. As we say, we are LIVING with cancer not DYING of cancer. I hope the chemo is not too bad for you and that you'll be back on maintenance again soon. Sending hugs.

[NewtonEmma1900]

My cancer also returned after carbo/taxol and avastin and then just 2 treatments of Avastin alone. Today I have round 4 of carbo/caelyx. I have not lost my hair this time but it has hardly grown. I have had a few mouth ulcers and am progressively more tired. On the positive side no neuropathy this time and I have not had sore skin like others. On the negative side I have very bad constipation each time (I now pre empt that); my nails are very brittle and chipping, my immune system is very low - just had 2 nasty colds and a chest infection. On the whole though it’s been more manageable than the first regime and my CA125 is falling again. Sending hugs and best wishes. 🙏

[Realistic]

I send my ❤ love & positive vibes l had a blimp 2 years after my de bulking and had to have carbo/taxol 6 sessions and had a cancerous nobule in the bowel area removed.But 3 years on lm fine apart from having a hernia which needs attention. So please don't despair its not easy l know . Try and keep positive keep well, you can do this 💪 lm back to buying the frocks & booking the holidays. love & hugs SheilaFxxx

[Decatlinda]

I just had my last treatment with caelyx and Carbo yesterday. I used cold socks and could gloves during the time the caelyx was given. I alsof eat a icecream to protect my mouth. I haven't got to much problems. My hair tinned very much. I had 3 bloodtransfusions. I have nausea and can't eat 5 says after the treatment and alsof have e bad Taste in my mouth. But after a week it gets better. I wish you all the luck in the world. Don't loose hope

[Nov5]

Hi Ova-whelmed... very clever name association. I'm really sorry to hear of your recurrence. I too had my first recurrence and appreciate the mix of emotions you are going through. Just wondered if you have the BRCA gene? If so may give you alternative treatment pathway. I'm sure you're aware of this but just thought I'd mention it. Good luck. 💙

[Ova-whelmed in reply to Nov5]

BRCA negative my tumour was classed as wild type which always makes me laugh because I'm the least wild person I know. It amuses me to think of my tumour having a wild time without me. Oncologist says if I have the good response I will be a candidate for a parp.

[Katmal-UK]

Sorry to hear you have recurred. Any reoccurrence is hard but all is not lost, you are stronger than you think. I have had 2 recurrences and still here in my 16th year having been told I had a couple of years at diagnosis. You can do this. I wish you all the best, big hug, Kathy xx

[Kaitlinsmum]

Good luck. Sending a big hug x

[SopSinger]

Lots of good advice here - I can't add to it but I'm sending you a big hug!

[Ova-whelmed]

Thanks for all your replies it means so much to be part of a supportive community. I can't reply to you all but I have made note of all the advice it's really helpful. My response to the news was not helped by coming down with a stinking cold (non covid) that gone now but had left me with a bit a crackly/wheezy chest do you think I would try to get the Dr to give me some antibiotics to stop it developing?

[delia2]

Hi. I’m so sorry about the recurrence. You’ve gotten good advice here. As to the chest infection yes, get antibiotics if your gp feels they’re warranted. I just went through three weeks of first Covid, then asthma exacerbation, then pneumonia and now I’m dealing with side effects from the antibiotics. Xx

[Pooshon]

I’m in the middle of this regime for second line therapy and I must say I’ve tolerated it really well. No real issues at all, I hope you have a similar experience with it. x

[Goodgirl98]

wishing you well and sending lots of hugs 🤗

[Leniko]

I totally understand. Am now having my 4th recurrence. We just have to keep trying different things to knock it back. I now consider this a lifelong battle. I plan to keep fighting!!