end of mom's remission: Hi, there! i was writting... - My Ovacome

My Ovacome

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end of mom's remission

Inguc_is profile image

Hi, there! i was writting before, my mom had ovarina cancer 2b stage and 6 chemotheraphy in 2017, now in may 2021, cancer is back with a lot of matastaes all around stomach and lymph ( probably outside liver) there is no organs inside as we understand. Her Ca 125 was 220 when they found situation, after 1st chemo it goes up to 236, but after 2nd it went down to 116, is it good singn? i am just affraid as waiting her new blood control results, Leikocit is goo more than 7 , but hemoglobin go down to 105, what u use to take it up?

Tomorrow she is going to hospital to have CT scan and 4th chemo... affraid a lot :(

21 Replies

hi - has your mum had pet scan and mri yet? my hospital goes through a series of tests to work out what's wrong. i'm worried i may be in a similar position. am sorry i cannot help but just send a hug to you both. try to be brave for your mum. xx

Sounds like the chemo is actually doing the job her CA125 is coming down. The scan tomorrow will hopefully give a clearer picture. Stay strong for your dear Mum sending love to you both and hoping for good results for her. SheilaFxxx

Inguc_is profile image
Inguc_is in reply to Realistic

After 3rd it goes to 73

Worst feeling ever watching your mother suffer. Thinking of you and praying for the best 🙏🏽

Inguc_is profile image
Inguc_is in reply to Lind58

well thx God she feels ok, just sure not easy first week after chemo, but than normal life)

Hi, certainly sounds like the chemo is doing it’s job. I was diagnosed 3b in 2007 and despite 2 recurrences I am still here with current remission of 8 years this month albeit on a Parp inhibitor. I know from experience how frightening and scary it is watching yr mum going thru treatment but she is receiving the best care. Big hug to you both. Kathy xx

Realistic profile image
Realistic in reply to Katmal-UK

Hi Kathy,

2007 wow just what we all need such marvellous news, your an inspiration thank you for sharing. And your so right it is a frightening journey but we can lead a normal happy life.

And your showing how its done. Love & hugs

Sheila Fxxx

RoseMS profile image
RoseMS in reply to Katmal-UK

H Katmal. That’s lovely to hear of your remission of 8 years. Is that 8 years on a PARP inhibitor and if so, which one please? I am on PARP but have to come off it after 2 years which will be very scary.

Katmal-UK profile image
Katmal-UK in reply to RoseMS

Hi I have been on the parp for 7 years 8 months so was in remission before I started on the trial. I am on Olaparib x

RoseMS profile image
RoseMS in reply to Katmal-UK

Wow, thats great. And no side effects…….are you still on full dose? How often are your bloods and any scans (what type?) done may I ask? Its brilliant to hear this, thankyou. X

Katmal-UK profile image
Katmal-UK in reply to RoseMS

I do have side effects but over times these have reduced. I have been on 600mg per day since Jan 2014. I follow the trial protocol so have bloods done every 12 weeks and scans every 24. Kathy xx

Inguc_is profile image
Inguc_is in reply to Katmal-UK

what is ur ca 125 right now and how it was when there was recurrence

Katmal-UK profile image
Katmal-UK in reply to Inguc_is

It’s below 3 . on recurrence it was 65. mine has never been high but it is a good indicator for me. At diagnosis it was only about 365 and I am stage 3b.

Inguc_is profile image
Inguc_is in reply to Katmal-UK

my moms when diagnosed was only 30 it was stage 2b and all the time it was aprox 10-12, than once go 18 and when thet found recurrence it was 220 :(

Inguc_is profile image
Inguc_is in reply to Katmal-UK

how "big"was ur recurrences? she has a lot of small points all ouver stomach and also in lymp :(((

Katmal-UK profile image
Katmal-UK in reply to Inguc_is

I had 4 areas the first time, a few cm and 3 on the second recurrence, again a few cm.

Inguc_is profile image
Inguc_is in reply to Katmal-UK

well i think our situation is not so good :( but i hope for the best,,, after 3rd chemo ca 125 goes to 73 and i think it is good result no?

Katmal-UK profile image
Katmal-UK in reply to Inguc_is

It’s going down so that is deffo a good result.

It looks like the chemotherapy is working, hopefully the ct scan will show a reduction. Maybe when she has finished treatment she can go on a PARP inhibitor, you could ask her Oncologist.

As far as the haemoglobin is concerned they will intervene when it’s too low.

I understand it’s all scary I found it harder to deal with when my mother had cancer than me having cancer. But the treatments get better all the time. Sending you a big hug 🤗 Mish xx

Inguc_is profile image
Inguc_is in reply to Heart12345

i hope that scan will be good... if marker is going down... well PARP is not easy for us in Latvia, but we will see

Hello, praying for your mum and you to stay strong and positive, I’m agreeing with other ladies here we all have had reoccurrence and bounced back let the chemo finish working sweetheart. Give your weakness to God and He’ll give you His strength. Praying for both of you!

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