Just finished my 4th treatment of weekly Taxol and by biweekly Avastin, which is going really well. Haven't lost hair yet except for my lady area which is weird, well guess it is saving me money from getting a wax...😂😂😂. And also no real side affects yet, knock on wood, just get tired around day 2-3 and that's about it. Last around didn't even have to take nausea medicine woot woot.
Just got my first CA125 while going thru my fourth treatment and it dropped from 53 to 17, so it's working. So happy to see results going in the right direction.
Wanted to share a small victory and give some good news to my teal sisters.
Cheers!!!
Shelly
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PCCDaisy
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Hi Shelley, That is really great news, & I am really pleased to hear that this regime is working for you. It is good also that you have hardly had any side effects, which makes a huge difference to everyday life.
Take care, stay safe,& I wish you a Happy New Year. x
That’s great news Shelly , just what we need at the moment! You must feel so pleased 🤗all we need now is a vaccine & Spring 🌷🌺🌞.All stay safe DeeX
Well done that is fantastic news! I am also on weekly taxol without too many side effects, I have had 5 infusions only a few mouth ulcers, I have lost my hair including the lady garden! but I don't mind if it works. I am on day 3 of my last infusion and can't stop falling asleep, oh well what else do I have to do 🤣 I hope your CA125 continues to come down, mine has reduced by just over half, but I was a little bit higher than you at 4000 🤪
Congratulations on such a speedy response to the treatments, long may this trend continue lovely lady. Stay safe and as well as you possibly can be ❤️xx Jane
Really pleased Shelley, looks like it's all going according to plan.Happy New Year and stay safe. Sue xx
Brilliant Shelly. I too am on weekly Taxol and my CA125 has dropped from 700+ to 48. I have 5 more treatments then the scan! Very few side effects hair very thin and tufty, think the scissors will have to come out.Good luck with the rest of your treatment.
Just finished my 4th treatment and hair is coming out near my widows peeks, guessing the scissors will be in my future too. Ohh well it will grow again and a small price to pay. Thank goodness it is beanie season....
It’s always great to hear someone’s wonderful news!! That’s all we wish for. Congratulations, keep up the good work and may it stick for a long, long time 🤞🏻💕
Thanks this gives me sone hope. I’m on Taxol 3 weeks on 1 week off so hope this means my Ca125 willHave also have dropped. Get my results back in a week’s time so fingers crossed!
Pretty much forever as long it is working, they are using Avastin as a maintenance drug for me. They are trying this out and explained they have so many other tricks up their sleeve to use if this doesn't work. Crossing fingers that it does. As for a reoccurance, they believe that my first around didn't get everything out so these 16 rounds will then on top with Avastin will and keep it from coming back.
Wonderful news, just what we all need to hear and that dreaded ca 125 is most definitely going in the right direction your treatments working fantastic. Stay positive & keep well love & hugsSheilaF xxx
Great to hear you are coping soo well. I too am on weekly taxol & having a break before my 11th, only cos was feeling v.tired & Onco said it is usual, not always, for a break at this stage. Like you am coping ok, have lost my hair again, it’s cold so easy to cover up. Stay strong & will follow your progress.Cheers Iside X
My hair now started to fall out, got some wicked widows peaks. Thought time for a new haircut and brought out the buzzers. Since just finishing up my 5th treatment rather take control then seeing hair on my pillow case again.
Continuing, have now lost all my hair, start chemo again on 20th=12th !!!Had Pfizer vaccine last Thurs., feeling breathless told my Haemoglobin is low cos of chemo!!! Soo in continuing weekly may have yo take more breaks before I reach 18th in March!!!
Great news here re Niraparib, it is now to be given to more OC sufferers!!! Won’t know till I finish chemo, can wait Iside X
Hi Shelly that’s great to hear. I am due to start the same regime next week for my third lot of chemo. I am so glad it is working well for you. Can I ask apart from the fatigue do you feel ‘normal’ other than that. I am just so looking forward to some kind of normality at some point. Take care x
Yes feel a lot normal, just get tired on the weekends because treatment is always Thursday. They did take off of Avaistin because had weird reactions such as rashes and irritated bladder, which now they will be putting me on Olaparib after qhwn I am done with my weekly Taxol. So know counting down the weeks and my last Taxol will be the end of May.
I have 3 pre-treatments which is 20 minutes a bag which are steroids, Benadryl, and pepcid. Then when those are done then Taxol which is an hour. So all together 2 hours in the chair
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Very good CA125 result, over 5 years since last dose of chemotherapy
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