End stage and nausea?: I have been dealing with... - My Ovacome

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End stage and nausea?

Natsmb profile image
8 Replies

I have been dealing with stomach issues for a while now. I tested positive for h pylori in late September, took a dose of heavy antibiotics and started feeling better right away. I thought that would be the end of it but I continued to have more gut issues (uncomfortable fullness, bloating etc.), So ended up on some heavy probiotics which definitely helped. No more massive bloating and uncomfortable fullness after eating.

This past Thursday I was woken up in the morning about 3:00 a.m. with very severe back pain which I assumed was a muscle spasm. It came so suddenly and so quickly I initially thought it might be a kidney stone. I have had kidney stones before and this was not exactly the same.

The pain was so intense even taking 20 mg of Percocet on top of morphine (my doctor's suggestion) did not mitigated it even in the slightest. I might has well have eaten a cookie for all the affect it had.

Along with this very severe pain I began to throw up nd then eventually I had nothing left over to throw up and was just dry heaving non-stop. I would reach a point where my body wanted to pass out but the pain would wake me back up with a spasm.

My poor mom had to call the oncologist because I couldn't even think of the words and describe what I was dealing with. I just wanted to pass out. It's a good thing I have experience using various pain medications because I would have been very tempted to take a whole bottle and just escape the pain had I not known it wouldn't have done any good. It was most definitely an absolute 8 on the Stanford pain scale if not a 9. I can tell you right now both of my major surgeries were less painful than this.

After calling my oncologist, we assumed that the nausea might have been from the pain, but as she was unable to prescribe any stronger medication than I already had without admitting me to the hospital the only other option I had was to request hospice which I did.

With insurance complications and so on and so forth, (to make a long story even longer), it was over 12 hours that I'd been dealing with this pain. From that point on it took nearly eight more hours before the pain was under control holding steady at a 4.

However, since then, I have been non-stop nauseous. I have already been dealing with morning nausea and occasionally if I eat something I shouldn't I deal with it in the afternoon as well but this is a different animal. Anything I eat or drink, no matter what the quantity, -10 minutes later I'm gagging everything up again. Ice chips, yogurt etc - nothing is staying put for longer than 10 minutes to a half hour. I ended up fasting by default for about 30 hours but I still kept gagging. These vomiting issues left anywhere from 2 minutes to 10 minutes of trying to get something out of my stomach that isn't there.

Although it feels like this came on very suddenly maybe it's just escalated very quickly because of how long I've been dealing with the nausea. I would have thought it might have been the morphine but I've been off morphine for a couple days now. If it was due to the severe pain then I would have expected the nausea to wear off now that I started the pain meds.

Is it possible this is tumor related? It seems to have started so suddenly in terms of the intensity in the duration. Does anyone else have a situation that's similar or came across one that's similar?

I don't know if the pain in my back is ongoing. I know that one of the tumors that I've been aware of for about a year now has increased in size and is now growing into the bone . It's on my left side right alongside my spinal column.

I guess what I'm wanting to think about is if this nausea is most likely related to the cancer and if it's possible that it could just pop up that quickly?

I have been taking THC, morphine, all kinds of different type of pain meds propylazene, methyladozine(okay I probably just made those two up but they sound good and none of them work), zofran, ginger, various teas, licorice, stopping medications that might increase vomiting, you name it I've done it. Any other ideas? the medicine I am on right now is not long term friendly. I will have to stop it after a week.

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Natsmb
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8 Replies
SUE7777 profile image
SUE7777

I'm really sorry I can't help you it sounds like you need a face to face with your Doctor. Sending you a big hug. Sue xx

Eriksendi profile image
Eriksendi

That sounds terrible perhaps a trip to a and e as you may have an obstruction. I have been having constant pains and digest issues since I had my stoma reversal. I had to go the other week as the pain was excruciating. They were absolutely brilliant, I had bloods , water and stomach X-ray all within 30 mins of going in. Turns out I have a narrowing of a join and adhesions giving the problem. Just waiting to go in for a dilation procedure which they hope will help. I hope you get it sorted very soon x.

OvacomeSupport profile image
OvacomeSupportPartnerMy Ovacome Team

Hello Natsmb

I'm sorry to hear that you're having such a difficult time with pain, nausea and vomiting. As your symptoms are severe and persisting despite the medication, it's important to seek medical advice to help find out what could be causing them and how they can be managed. I would recommend getting in touch with your doctor today.

I hope that you can get some help to manage your symptoms soon.

Best wishes

Julia (Ovacome Support Services Officer)

delia2 profile image
delia2

I can’t help except to say you should go to a and e. It sounds like a bowel obstruction but I am not a doctor. I hope you get help soon. Gentle hugs.

Neona profile image
Neona

I can’t answer your questions but send love and hope you get something sorted quickly.

delia2 profile image
delia2

Hi. It’s me again. I’m in the US too. If you’ve gone on hospice does that mean they’re entirely in charge of you and you don’t get medical intervention except for pain relief? I was wondering whether radiation could be used on the tumor encroaching on your spine? But it sounds like the nausea and vomiting are the most pressing problem. Keep asking for help til you get it. I’m sorry you hoped going off chemo would improve your quality of life and instead you’ve been plagued with nausea.

Natsmb profile image
Natsmb in reply to delia2

Good idea. The radiation is something I did talked with my doctor about several months back but we were still on chemotherapy. Now that I am not on chemotherapy, I should try again. The first couple of times I brought it up I was basically told they don't do radiation on ovarian cancer because "it's hard to target" and it's metastasized.

But not too far long ago I read a story of a gal my age who was facing additional chemo. But somehow, she managed to convince her doctors to give her radiation therapy by showing that it was being very predictable and showing up in the same spot all the time period so I will look into that. Thank you.

Realistic profile image
Realistic

So very sorry your having such a tough time, pains not nice you poor thing. I would make a trip to your local A E. Dept taking your cancer card with you so they see to you immediately.

Ive only had to use mine once thank goodness but was so impressed l had a very high temperature and was vomiting not nice . But within 20 minutes l was seen and on a drip sorted and home within a couple of hrs.

Good luck, sending love & Hugs SheilaF

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