The last 4 weeks have been up and down but especially the past two weeks.I needed 2 units of blood last week and my bloods reading yesterday shows bloods dropping again.I feel miserable.Palpatations,fatigue,low blood pressure and rapid heartbeat,which only gets regulated by infusion of fluids.Vein collapsed during transfusion,all other veins in hands and arms are collapsing.
So is the drug working? I don't know,all I know is quality of life is greatly diminished for me,either due to the meds or due to the cancer and it's mainly being totally wrecked from walking from the chair to the door.Taking a shower leads to a decision on whether Ill have the energy to dress myself or go back into pjs.I haven't had a scan since last Oct so hopefully I will have one soon.If the drug is working and it's managing my cancer than maybe there's treatment for the bloods ,heart etc.ive an appointment tomorrow so,hopefully I'll be set on the right road.Ive also to inquire about the care in the home.When do you actually need to go to the ER,when will a GP do,what should I do at home if I get sudden onset of pain? Do I take the morphine or does it need investigation.I am not medically trained so I wouldn't know if it was a blood clot,severe muscle spasm,severe heartburn etc,so how am I supposed to decided on what is an emergency,when to take pain meds,if pain goes away from morphine does that mean the cause wasn't serious.I don't think I'm the only one in this boat.Rant and confusion over!! 😜🙉🙊🐵🙈