Enlarged precardinal nodes

[Farawla]

Has anyone else had this diagnosis and if so how was it treated? I am having chemo but this bit of information has scared me a bit, just want to know others experience.

[Hidden]

Try not to worry (easier said than done I know) you are in good hands. Your team will keep a close eye on you, they compare CTscans and will monitor what your lymph nodes are doing. Also remember that lymph nodes can be enlarged due to an infection not always cancer. Take care x

[Redlawsy]

I hate it when that happens, you think you have a handle on things then a something new is mentioned and it all gets scary again.

The disease (Primary Peritoneal Cancer) I have is mostly in my nodes so they’re used as a barometer for the disease. My shocker is if/when an organ is mentioned!

There’s a possibility your node is also a barometer, I’m not sure of the exact circumstance in which you found out about this node but it may have been monitored all along without you realising it.

Try not to panic, you’re in active treatment and you’re being monitored.

I’d suggest you ask them if it is a recent development, that way you may have the answer you need for understanding and some peace of mind. Stay safe x x x

[Farawla in reply to Redlawsy]

Thank you Redlawsy, I also have the same as you. As you say, when different things get mentioned it throws me into a new circle of panic. At first they mentioned lungs and now heart, I should have another scan soon which hopefully will make things clearer. Have you had any Debulking surgery ? Another thing they are talking about!

[Redlawsy in reply to Farawla]

Hi Farawla, I’ve not had any surgery. Basically my situation is ‘why close the stable door when the horse has already bolted’!

On diagnosis the disease was only visible in my lymph nodes so they wouldn’t have known what to ‘excavate’ even if they went in. This year I found out my left ovary is enlarged but no more organs are showing disease.

Apparently it is a rare cancer (i’m sure you know) and mine is also a rare presentation.

The docs also refer to it as small volume disease, meaning lots of small tumours not showing up on scans...little determined bugger though for spreading to all my nodes!

I’m stage 4 because of the spread.

I’m past panicking about where the enlarged lymph nodes are spotted ( I really don’t mean to sound calous) because I’m fighting a good fight...although I like to think of it as a dual...because I’m here writing this post.

I’m nearly 3 years into diagnosis and on my second recurrence.

I’ve had many conversations about surgery and I may still have it yet but for now I’m on a trial at the Marsden and things are going good, a 43% reduction of disease measured in the nodes since January. It involves paclitaxel and a new drug referred to as Boston.

I firmly believe all is not lost, I hope you do too x x x

[Farawla in reply to Redlawsy]

Hi I’m at Marsden too, Sutton branch but unlike you only started treatment a couple of months ago. So many technical terms to understand, I feel like I don’t really know yet what’s going on inside but hope to understand more as I progress.