Just to let you know I am out and feeling very weak and very upset by the way I was eventually treated.
I think I wrote to someone on their post so probably not everyone saw it.
I woke at 2.30 at night, soaking wet as I had the night before that - freezing cold with all my clothes all soaking wet, called the nurse and she eventually came and saw what a state I was in and proceeded to remove all the blankets and sheets to which she turned to me and said she was going to look for sheets and if she did not return in 10 mins to press the button again - it all seem very strange. I was there in my soaking wet clothes, freezing with the cold, so put my dressing gown on top my wet clothes and tried to put some of blankets back on me. 10min later I pressed the button again, another nurse appeared walked around the bed and then left, while I tried to explain my situation - she was not interested and left without a word. By then I was all most hysterical - 2 mins later the other nurse returned with one sheet and proceeded to change half the bed leaving me with a type of electric blanket, with two blankets and telling me to call if I did not warm up in 10 mins.
The next thing that happened was really scary and I was beginning to believe that I was going mad at that point. The 2nd nurse comes back and informs I will be leaving my side-room to be put in the main ward to which the animal instinct in me kick in. I said well if I go to the main ward you are signing my death sentence as my immune system will not survive this and I certainly will not be accepted in the cancer ward. Why had they not put me in the cancer ward earlier in the day (my oncologist had asked to have me moved) but they had insisted they had no one who could do it. Also at this point I would prefer to go home and take my chances with my family around me. She disappeared and then came back saying no need to leave my bed they were moving someone else.
I rang my daughter-in-law in the meantime who is a manager of a care home to which she was horrified and she said leave it to me I will ring them in the morning and ask them what the hell they are playing at. Well to cut a very long story short - things changed completely from there on and I left the hospital in the quickest time ever. I think they were just glad to get rid of me.
I forgot to say before this all happened a helicopter had landed and a lot of movement at gone out side my room.
I am not a stupid woman and I have put two and two together. I have nothing to say other than fight for lives my dears believe in yourselves at all times and we always have the right to live as much as anyone else. Especially when we don't always have our families around us to fight for us.
A very big hug to you all in these very difficult times.
Anne XXX a very stressful letter to write.
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What an awful experience for you , lucky that you had your daughter in law on your side , I would be putting a complaint in about the way you were treated. So pleased that your at home now . Take care .
I hope you feel a bit safer and more comfortable at home! Not a good hospital stay for you but I think where they are still getting flurries of Covid people, things have broken down a bit. It was certainly taking ages for call bells to be answered when I was isolated on the Covid side and often with staff drafted in and unfamiliar with supplies cupboards etc.
I am expecting chemo tomorrow, so still in at the mo. Hope you do start to feel a bit better now xx
I agree that things must be very frightening for the staff but it was the inhumane way that I was dealt with. I understand that maybe your brain goes out the window and behind the young nurses were other more important staff, but when you are at the end of such treatment and when you are ill and weak is not a good position to be and necessary to put even more of a fight.
Your ordeal sounds completely crazy and the opposite of good nursing.
Your night sweats remind me of when my liver packed up years ago and I was also on massive amounts of steroids.
Every morning, I woke up soaking wet with my bedding ringing wet. The housekeeper would change my bedding while I showered (don’t ask me how I managed this, as I was so very ill), but the night sweats stopped as my liver healed. The good news is that your liver can heal!
I simply don’t understand what was going on there.
Are you still able to get chemo?
I hope you heal soon, but your reminder to keep up the fight, echoes mine.
I get awful sweats day and night and it's not menapause related I have a very fatty liver almost cirrhosis level .. may I ask what was causing your liver problems x
I was never sure. At the time, when I was first hospitalised, they thought I had infections Hepatitis, but that proved to be wrong.
Later they decided that I had mononucleosis, or Glandular Fever, but I was never certain about it, because whatever it was, was so severe, it caused my bone marrow to shit down and revealed a genetic blood disease.
My liver was so bad, my clotting system went into overdrive and it was hard to get a blood sample, as my blood clotted so quickly.
I had several agonising liver attacks, because I foolishly tried to walk around and climbed too many stairs.
The only cure was total rest. But it healed finally.
I was 18 years old and lost that year, and it changed my life.
But I still went on to having an amazing life!
I don’t know how one heals a fatty liver, but I hope you can.
Oh Laura that sounds awful .. I am so glad you got over that 😊 a fatty liver can be reversed if it's not got.tjat bad it's cirrhosis then it can't .. I am careful how much fat I eat now as I had a gallbladder attack and ended up in hospital last year in agony ... I've never known pain like it .. i have a large gallstone too it needs removal but I can't have surgery .. I then had another attack a few months after and they said it was liver pain ... I just have to watch my diet
Hi Anne, So sorry to hear about your awful experiences in hospital. You can't make it up can you! Glad to hear you're now back home where you can improve in the comfort of your own home. Gwen xx
Glad to hear you are now home after such an awful time. You are certainly right about fighting for yourself. Hubby had a bad experience a year or so ago and I ended up complaining to PALS. We had an apology after a full investigation and there were 14 points that were picked up on by the hospital. I do hope you feel better now you are home. Kathy xx
Sorry you have had such a tough time. The fight is still in you I’m sure and I hope you will soon feel better with your own home comforts. Everything feels against you when you are low and vunerable. My own hospital experiences I remember constant noise, interruption and hunger. And waiting.... Take care Anne.
Oh Anne what a horrible experience. You are right to stick up for yourself in these situations as otherwise bad decisions can be made for you. At least you are at home now. I'd suggest putting everything aside and concentrating on feeling better. You've recorded everything that happened in an email so if you want to make a complaint in the future it's all there.
GLAD YOU'RE BACK HOME AND HOPEFULLY FEELING BETTER. THEY SAY A HOSPITAL IS NO PLACE TO BE IF YOU'RE SICK. UNFORTUNATELY, IT'S TRUE. AND WE ALSO HAVE TO BE OUR OWN ADVOCATES. SORRY TO SAY, I FIND THE MAJORITY OF DOCTORS AND NURSES HAVE THE COMPASSION OF A LETTUCE.
First rule is to be happy with your treatment and doctor. If not change. Well done for standing up for yourself and best wishes for feeling better very soon.
Dear Anne, Your treatment has been absolutely disgusting, I am so sorry. I'm glad you are home you'll be better off those nurses were terrible. I think you need to complain to pals regarding this. I hope your soon feeling better and comfortable. Sue xxx
Sorry you were treated so badly - makes me sad & angry in equal measures. Those nurses were terrible - I can't believe that there's such a shortage of nurses in your area that they've had to draft in such a heartless bunch.
Glad you are home & in the hands of people who love you.
Anne that sounds awful. Thank goodness you had someone to call who could help you escape! I do worry that people are being admitted and then not able to have relatives visit them and fight their corner if necessary. I hope you’re doing better now and nice and comfortable at home x
That must have been such a dreadful experience for you. I cannot believe any normal human being would treat someone so, let alone a nurse. Shameful. Leave it to a member of your family to complain, while you concentrate on getting better. Mindfulness or soothing music and the like.
I’ve experienced the night sweats while waiting for diagnosis and at the beginning of my first treatment. But nothing so severe as you’ve described. I slept on a towel and one on my pillow. I had a change of pyjamas and fresh towels by my bed. If I woke, I’d change pyjamas, swap the towels and straight back to sleep, hardly opening my eyes.
It’s good you were still able to stand up for yourself and insist you were not moved. Hope you’re feeling better at home and chemo is still doing its work.
Oh no! I am so sorry. Late night sweats are no joke. Andregardless of the stress and activity going on outside your doors, that was not an appropriate way to be treated. It doesn't take much to explain what's going on to a patient. And, when there changing things around you and impacting something that typing to you, you deserve an explanation. I'm glad that you got out of there. Home is safest anyway. Hospitals are for treatment but home is for healing. Hugs!
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