Haven't posted here for a while but thought I'd give everyone an update on mum...diagnosed stage 3/4 (never told) in Oct 11; 6 x weekly chemo carbo/taxol but hospitalised from week 1 as it made her so ill; told in January that no more chemo as no point, too far spread etc and given c. 4 weeks - moved to hospice; faded fast and told in Feb that it was a matter of days; she slept for about 3 days and then seemed to "wake up" in late February, her hair all fell out but she seemed to be getting "better" although the peripheral neuropathy meant that she couldn't move from the chest down.
She gradually improved daily over the spring and early summer, so much so that she could get into a wheelchair and we could take her outside every day for a walk (her hair started coming back in and she even asked for her make up bag!). They put her on daily letrozole at the end of May.
The last few weeks though have seen things head downwards again - the ascites is back with a vengeance; she has become very depressed and fatigued.
Then on Friday morning, to add to my nightmare, Dad had a massive heart attack whilst driving to the hospice to see Mum. He is stable at the moment but still in intensive care as he has a chest drain in and has developed pneumonia and has broken ribs from the CPR.
He's distressed as he can't visit mum; I took advice from the hospice docs and told mum what had happened - she hasn't really communicated much since.
The hospice staff have been great but I think that they are trying to "protect" me at the moment as they can see how stressed I am running between hospice and hospital up to 5 times a day......I'm the only one near at hand. I feel that mum is very near the end but think that they are keeping it from me, in a way.
Anyway, sorry for the "rant"! Just felt like writing it all down!