Two year anniversary: An anniversary that I wish... - My Ovacome

My Ovacome

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Two year anniversary

Juleswhee profile image
32 Replies

An anniversary that I wish I didn’t have but I am still here two years after diagnosis .

Still having a few problems with Niraparib ( BP , heart flutters and constipation ) but I am doing well even if I didn’t get NED again after treatment for first recurrence . Photo is from last week spent in Euro Disney with our girls and Baby Frankie for his second birthday . Think my theme park days are over though , my knees are really bad today .

Love to you all xxxx

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Juleswhee profile image
Juleswhee
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32 Replies
CallmeMum profile image
CallmeMum

Congratulations! Niraparib probably needs tweaking slightly, or add laxatives into the mix to get your bowels moving. I was there at the beginning of February had a fantastic time came back so bruised but was worth it xxx

Juleswhee profile image
Juleswhee in reply toCallmeMum

Hi , Yes loads of bruises but happy , happy , happy .x

CallmeMum profile image
CallmeMum in reply toJuleswhee

What was your favourite ride? Xxx

Juleswhee profile image
Juleswhee in reply toCallmeMum

Pirates of the Caribbean never gets old but of the new ones it has to be Ratatoille( spelt wrong I know ) .What is yours ?.xx

CallmeMum profile image
CallmeMum in reply toJuleswhee

I went with my daughter left the boys at home 🤣. We loved Rockin rollercoaster twilight tower and hyper space mountain (we’re speed freaks) it was our first time and will definitely be going back hopefully next year 😊 xxx

Juleswhee profile image
Juleswhee in reply toCallmeMum

Ahh, I am baby re rides , always have been lol.xx

CallmeMum profile image
CallmeMum in reply toJuleswhee

Still all fun and worth the bruising 🤣 we came down with that horrible flu thing on the second day don’t know how we got through it but we still did 🤣 xxx

Juleswhee profile image
Juleswhee in reply toCallmeMum

Not ideal but if anything can cheer you up Disney can .xx

CallmeMum profile image
CallmeMum in reply toJuleswhee

Oh definitely had the best time going xxx

JanePW1965 profile image
JanePW1965 in reply toJuleswhee

Pirates of the Caribbean - that takes me back to 2011 when we were in Disneyland Paris with the children. Fab place. We queued for around three quarters of an hour for this ride and as we got to the front my son was sick and we had to just climb over the boats and exit the ride!!!! Lovely photo. Jane X

Juleswhee profile image
Juleswhee in reply toJanePW1965

And we still queued for 40 mins , as popular as ever .xx

CallmeMum profile image
CallmeMum in reply toJuleswhee

We decided to use the fast pass so much easier! I’d recommend it to anyone 🤣 when we were waiting for the twilight tower fast pass there was a 30 minute wait for it so we done the 30 minute wait then used the fast pass so we got to do it two times in a row 😊 xxx

JanePW1965 profile image
JanePW1965 in reply toJuleswhee

I also remember a ride - I think it was Crushes Coaster. We had to queue for around an hour and we could hear the screams so it was nerve-wracking!! Started off really gentle then all over the place!! Give me A Small World any day!!! X

Juleswhee profile image
Juleswhee in reply toJanePW1965

We gave that a wide berth , my daughter said it was manic and if she didn’t like it I knew I wouldn’t .Small world is relaxing and our Grandson loved it ,kept saying “ look Nan “ , so sweet .xx

CallmeMum profile image
CallmeMum in reply toJuleswhee

Crush’s coaster and it’s a small world was shut for maintenance when we went, but will definitely go on them next time we go xxz

Juleswhee profile image
Juleswhee in reply toCallmeMum

Don’t think you will be impressed by small world but it is everything Disney , bright , colourful all including with a sickly sweet song you will hum forever .x

CallmeMum profile image
CallmeMum in reply toJuleswhee

I’ll give anything a go we done the buzz lightyear ride where you shoot Zorg that was good. I sometimes like sickly sweet we did Pinocchio and Snow White which we’re sickly sweet xxx

Juleswhee profile image
Juleswhee in reply toCallmeMum

Loved the buzz ride , turned into a family war about who got the biggest score .x

CallmeMum profile image
CallmeMum in reply toJuleswhee

Ours was the same 🤣 I said to my daughter next time we stay in the Disneyland hotel we stayed in hotel Cheyenne and that was good but we want to be closer to the park next time xxx

Juleswhee profile image
Juleswhee in reply toCallmeMum

We did the innovations meal in the Disney Hotel , it did look a beautiful hotel , our girls stayed in Cheyenne with our grandson and we stayed in Newport Bay just because we wanted a pool , which we never used as we were too busy in the parks.x

CallmeMum profile image
CallmeMum in reply toJuleswhee

The parks were amazing I’ll definitely be going again but be staying in the Disneyland hotel so we’re closer to the parks xxx

JanePW1965 profile image
JanePW1965 in reply toJuleswhee

I'm sure we stayed in Newport Bay too.

JanePW1965 profile image
JanePW1965 in reply toJuleswhee

I can still hear the tune now!!

Melody6 profile image
Melody6

Lovely photo. Take care, Mel xxx.

Lind58 profile image
Lind58

So happy to see you enjoying ❤️

Cropcrop profile image
Cropcrop

Happy anniversary well done on the two years milestone. Maybe a tweak in your meds could help with the constipation?

Lovely photo taken in a magical place, especially for the children. I hope a good time was had by all. I don’t blame you not wanting the hustle and bustle of theme parks but you’ve made another lovely memory with and for you and your family.

Take care ❤️Xx Jane

Juleswhee profile image
Juleswhee

Exactly Jane another memory , I need to make lots with my only Grandson , born two days after my diagnosis .With this rubbish diagnosis we never know how long we will be able to do these things so I will keep going until I can’t , hopefully that’s a long way away .xxx

Yoshbosh profile image
Yoshbosh

Happy Cancerversary! It’s my 3 year on in a few days time. Lovely photo from Disney - so glad you had a nice (if tiring) time. Vicki x

Juleswhee profile image
Juleswhee in reply toYoshbosh

Hi Vicki , Thanks , was going to put another reminder on FB re the symptoms as it’s OC awareness month but thought I would post something more upbeat to “celebrate” my anniversary on here .xxx

Maxjor profile image
Maxjor

Happy Anniversary and what a great way to spend it. I'm in the states and once asked Disney what was the least busy day of the year and they said the day before Thanksgiving so we trotted on down to DisneyWorld in Orlando, FL and even tho we got the fast pass it was not needed! There was almost no one there--my grown boys were kids at the time and we all went on our favorite rides about 10 times before moving on to the next! Anyway--wishing you all the best and the problems with the PARP smooth out. oxox

Juleswhee profile image
Juleswhee in reply toMaxjor

Hi , We went to Disneyworld when our girls were small (90s) and we went immediately after Thanksgiving and the parks were easy then. Loved all of them but nearly 30 years ago I could do a theme park a day for 10 days , sadly knees dictate I can’t do it now .Loved Florida though .xxJuliaxx

Wanthealth profile image
Wanthealth

Congratulations 🎈 enjoy your family adventures XX

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