1 year since my operation so celebrated on holi... - My Ovacome

My Ovacome

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1 year since my operation so celebrated on holiday's πŸ™ŒπŸŒ„ πŸ‡¬πŸ‡·

Newbery3 profile image
Newbery3
β€’36 Replies

Just an update, it was a year on 7th September that I had my debulking after 4 chemo then 2 following the operation with avastin added to last infusion. I'm also on olaparib, it's been a battle with joint pains and fatigue but I'm still here!!. I was stage 4 hgsc brca negative but hrd positive at diagnosis and am now NED πŸ₯³πŸ₯° holding ca 125 at 7. I have my days when I wobble mentally but mostly I am positive 😌 ✨️ anyway posting holiday pics to give any newbies hope and strength πŸ’ͺX

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Newbery3
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36 Replies
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wendydee profile image
wendydee

That’s such a wonderful post to read! Well done to you and your medical team. By the way, it’s normal to have a wobble or two. I’m 20+years NED and I still think, sometimes, occasionally, β€˜is this IT back?’ I volunteer with a Gynae cancer support group and it’s a frequent topic of conversation in our groups. We all agree, we never lose that little naggler on our shoulder who says β€œit could be back….”. Thankfully, we’re often able to put that little naggler back where it belongs: in a box in the corner of your mind! You’ve done remarkable well. Keep on keeping on!

Beatbigc profile image
Beatbigc in reply to wendydee

These are both great posts

I was diagnosed with stage 3c ovarian cancer and I’m only 53 . my operation went well and all visible cancer was removed Im just starting chemo and I just want some positive examples of folks surviving my stage of cancer. Any more positive stories would really help please!!

Newbery3 profile image
Newbery3 in reply to Beatbigc

I'm 52, was 51 at diagnosis bur had been to gp 2yrs before!! You have done the hard bit with the operation 😊 the chemo isn't as bad as you think, drink plenty of fluid before during and after, and let yourself rest up. Get little walks in and eat well, fresh fruit,veg + soups. You'll be fit before you know it X

Gonewith profile image
Gonewith

Hi, so happy for you, well done! I am exactly one year behind you, leaving hospital 7 days after my debulking operation. Reading your post made me think that could be me next year. ☺️ take care xx

Newbery3 profile image
Newbery3 in reply to Gonewith

Glad it helped you. This time next year I want to see a holiday post from you! 😜😘 I did go in January too buy I was physically ready! This holiday I swam, sailed, snorkeling, walked and it was lovely. Give yourself time to heal and rest up and you WILL get there xxx

Realistic profile image
Realistic

What a lovely post you look gorgeous, and like you lm on one of my holidays l got within 12 hours this time of my operation but it didn't happen so booked us a holiday. And of course got myself a new frock my way of dealing with things. So next date for operation is the 28th Sept. Ive got a feeling it will happen this time please god. Hope everyones coping and trying to stay positive 6 years next month for me. When my journey started so there is hope believe me. SheilaFxxx

Newbery3 profile image
Newbery3 in reply to Realistic

Have a lovely time Sheila xxx

Beaver54 profile image
Beaver54

what a fabulous post to read., thank you for sharing . Congratulations , and long may your good health continue. I’m still new on my journey but I hope I’ll be posting similar pic in a few months time. You look amazing. btw. xx

Newbery3 profile image
Newbery3 in reply to Beaver54

Well I'm still getting used to the hair 🀣 I was dark long and wavy but everyone loves it so🫑. Good luck x you'll get there very soon xxx

0462County profile image
0462County

Brilliant news, it gives me such hope. Lovely photo.

Love Beth x

bananayo profile image
bananayo

Great news, lovely photo you look great 😊 x

A1r1t profile image
A1r1t

Thanks for sharing your positive post, you look amazing considering what you've been through! πŸ’– Best wishes for the future, love & πŸ€— from Ivy.

Wirralian profile image
Wirralian

Well done you. My anniversary is 22nd September. I’m a 3b but otherwise the same as you. Who did your holiday insurance? I’m looking and finding it very expensive. Enjoy your holiday x

Newbery3 profile image
Newbery3 in reply to Wirralian

Insure with are the best for cover, but I just took my health card and we already had normal cover so I just went!! I thought well it's 1 week, I feel fit and well and I took 10days off all meds πŸ₯³πŸ€—it was worth it! X

RClover profile image
RClover

Congratulations, you’re doing so well. Keep positive and enjoy your holiday you certainly deserve it. I was diagnosed with stage 4b OC in July. Just completed 3rd chemo. Appt booke next with surgeon and oncologist 2nd October. All another chemo booked on 4th. Ca125 coming right down now 187 and looking good 😊. I am looking into other alternatives to beat the cancer and have ordered the book β€˜how to starve cancer’ it has come with recommendations. A woman who was diagnosed with cervical cancer had treatment for 5 yrs the developed lung ca. she was told no further treatment and had a matter of 3 months. She did her own research and enveloped this book with her findings and success now cancer free. Also many people have followed the plan and have done well. We have nothing to loose as with our diagnosis there will be a time we’re the treatment will be no more. I want to live and my saying goes β€˜ I can do this, I can beat this I am strong’. Pleas have a look at the book, & reviews. Best of luck please keep well and enjoy your holiday.

Newbery3 profile image
Newbery3 in reply to RClover

I am reading it right now! I had already started oxygen therapy before even starting chemo last June, I go twice a week and also cut out sugar as much as possible and only eat fish and a little chicken. All vegetarian as fresh as possible and as many vitamins I can get. The new food plan is definitely making me feel healthier 😌 good luck and stick at the positivity xxx

Motiva profile image
Motiva

Such a joyful photograph of great significance. On my way back from the hospital for wound breakdown management as I read your message. It was the boost I needed to keep on keeping on. Always good to have a holiday to aim for especially being in the water.

It looks very lush and hot where you are. Keep enjoying being NED and that lovely low CA-125.

F x

Newbery3 profile image
Newbery3 in reply to Motiva

Glad it helped today πŸ₯° you'll soon get sorted, then get yourself a little break away x p.s. oxygen therapy helps healing x

timespa profile image
timespa

Congratulations, and thank you for updates:))

Pianoplayer731021 profile image
Pianoplayer731021

Thankyou for sharing your news. Your post is so colorful and cheery! xx 😊

BallyMacfan profile image
BallyMacfan

Wonderful news. My ca125 has stayed at 7 and long may it continue for both off us xTake care jaynex

Newbery3 profile image
Newbery3

πŸ’― we will choose our destiny! X

NewtonEmma1900 profile image
NewtonEmma1900

Wonderful news. Long may it continue!πŸ™x

Norelo8 profile image
Norelo8

hi Newbery3, what a fabulous photo , you look so fit and well, glowing!

Thank you for sharing and encouraging everyone.

Love Kx

COHEN123 profile image
COHEN123

Brilliant. Keep on going. Xx

Tealgirl7 profile image
Tealgirl7

So happy that you had such a nice holiday and you look great. Are you still taking the parp. with Avastin. I have not found very many people with this combo. I have had my second treatment and other than being tired and some of the joint pain feel great. However I have developed a rash that is very itchy. I am hoping this will work for me. My level is dropping which is great. I have one more treatment and then a scan to see progression. Sending positive vibes.

Newbery3 profile image
Newbery3 in reply to Tealgirl7

Have you tried taking an anti histamine? Ring the gp if that doesn't work. I haven't had a rash but I've had itchy eyes now and again. I think the menopause can cause a change and make us more allergic to things too. Yes I'm sure this treatment will work for you too! πŸ₯° the joint pain stiff neck thing is annoying but some days are better than others xxx

Tealgirl7 profile image
Tealgirl7 in reply to Newbery3

Thank you so much I will try that. Fingers crossed.

Newbery3 profile image
Newbery3 in reply to Tealgirl7

Yes I'm sure it'll work, take them foe a few days to see x let me know x

Pixiepurple profile image
Pixiepurple

You look amazing. Thank you so much for sharing this post. Gives us all so much hope x

Tulips66 profile image
Tulips66

Hi Newbery3, well done to getting through what is probably the hardest thing you have ever happened to you. It is not only hard on your body, but also mentally too, but I think half the battle in getting through is having a positive mind. A holiday abroad really picks you up & helps you forget for a little while. We had booked a holiday abroad before I was Diagnosed Jan 2019 at 53yrs & my husband said, we are not cancelling it because it will help you get through everything & he was right. 10 days after finishing chemo we headed off, bald & weak but it felt brilliant. I have seen my then 19 yr & 16 yr old daughters graduate from college & recently start work in their chosen careers. I never thought I would see that day, but I have!! Even though I had a recurrence in 2020 I am still here & feeling really well & getting my life back again. Hopefully my story, like yours will help all the women too who have been recently diagnosed & are on our journeys now. I wish you & all the ladies well going forward X

Newbery3 profile image
Newbery3 in reply to Tulips66

A lovely message πŸ₯°πŸ˜˜thank you. It's so good to hear positive stories ☺️ we have a future!!! We need to enjoy everyday X

Lind58 profile image
Lind58

great news, I wanted to know if you could provide some details regarding olaparib. My mom was diagnosed stage 4 hgs hrd positive and they have told us that she doesn’t not qualify. Thank you for any details!

Newbery3 profile image
Newbery3 in reply to Lind58

Hi lind58 πŸ₯° where are you in the world? I'm in South wales UK. I know that in this country, if you are HRD positive, you qualify. Are you in the UK? I'm also on Avastin did your mother get offered that treatment? X

Lind58 profile image
Lind58 in reply to Newbery3

Hi! We are in the USA. Yes, she has had avastin the in the past.

Newbery3 profile image
Newbery3 in reply to Lind58

Then I think you need to ask your oncologist what the reason is that your mum doesn't qualify? It may be down to money πŸ’° and that's wrong! Or they may be keeping it incase of reoccurrence, I was told to attack the cancer head on straight off the bat with both drug's by Christina Fotopoulou, look her up she's amazing! Maybe get a 2nd opinion if you don't get the answers from your mum's team πŸ₯° Big Cwtch x

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