Sound Familiar?: Hi Ladies, I have had three... - My Ovacome

My Ovacome

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Sound Familiar?

yo207 profile image
32 Replies

Hi Ladies,

I have had three recurrences of ovarian cancer in six years. I am on Avastin now. Lately I’ve been experiencing tension or sinus headaches frequently, my gums bleed a lot and I feel discomfort in my neck area. I am getting a CT scan tomorrow but if the abdomen. Am I freaking out again or can these be signs that the cancer had metastasized to my head area? Hoping not. Thank you all for reading. God help us all. Keep fighting! 🕯

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yo207
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32 Replies
Cynthia18 profile image
Cynthia18

I am so sorry...your in my prayers

Irisisme profile image
Irisisme

Hi Yo,

Sounds like it might be side-effects of Avastin. I used to get daily nose bleeds and I’ve heard of people on Avastin having sinus and gun problems. You need to report the symptoms to your chemo unit or whoever is monitoring the Avastin doses.

I wish you luck for the scan and will keep my fingers crossed it isn’t anything more sinister.

Hugs,

Iris x

yo207 profile image
yo207 in reply to Irisisme

Thank you so much! I appreciate it. I will tell my doctor when I see her for my results. 🙏

Joanie12 profile image
Joanie12

I had sinus problems, neck pain, joints ached and headaches, I think you will find its avastin side effects! Good luck with your scan, Joanie

yo207 profile image
yo207

Thank you so much. It’s so hard to know what really are side effects and aren’t.

sticky3006 profile image
sticky3006

I also have nose bleeds and a very stiff neck. I've also had a couple of migraines which is unusual for me. I think these are all associated with Avastin so hopefully the same for you, sticky77

yo207 profile image
yo207 in reply to sticky3006

Thank you. I will give an update once I know. 🙏

Luchie profile image
Luchie

I finished 18 cycles of avastin Feb.2018. All those you mentioned are mostly side effects of avastin. Neck pain, shoulder pain, joint aches and the sole of my feet are very painful. So it must be the avastin causing it, although some doctors don't agree with these side effects. Best you speak to your oncologist. Best wishes🙏❤️

Its common to have nasal issues, these can be helped with Neil Med rinses. Indeed bad joint pain hands knees and ankles and also the neck. I had about 18 sessions and all these cleared up when finished.

Alifit profile image
Alifit

I had bad headaches whilst on Avastin - my blood pressure was high and I’m fairly certain that was the cause. I used a migraine drug (prescribed - I have a history of migraines) called Sumatriptan but found acupuncture really helped.

My nose was constantly dry and consequently bled if I blew it hard - I used stuff called Nasogel to help this. I also had aching joints.

Your medical team should take your concerns seriously, but as everyone has said, these symptoms are common side effects of Avastin.

I hope your scan shows good results for you, Ali x

Seasun36-uk profile image
Seasun36-uk

I agree with Ali & experienced the same. Avastin has a lot to answer for! I finished in August & still have raised BP, aches etc etc....but do check.

Best wishes,

Linda

yo207 profile image
yo207 in reply to Seasun36-uk

Thank you so much. May I ask what happens after you finish?

Seasun36-uk profile image
Seasun36-uk in reply to yo207

Well.......the side effects gradually diminish (4 months now).

3 monthly checks & just living life to the fullest 🙂

yo207 profile image
yo207 in reply to Seasun36-uk

Thank you. Good for you! Live life!!

Lind58 profile image
Lind58

Best of luck on your scan 🙏🏽

yo207 profile image
yo207 in reply to Lind58

Thank you!

Cnmart profile image
Cnmart

Hi, I'm just coming up to my last dose of Avastin - 15 months of it. I've had joint pains, stiffness, nose bleeds, gums bleeding and yes, headaches. I actually had an MRI on my head/brain because the headaches got worse in the autumn last year, but they found nothing. I now take migraine tablets if I get one...which helps a bit. They've got better recently.. I've had so many aches and pains on Avastin ...oh yes, I also had bad indigestion for a while too.

Tell somebody if you're worried and get them to check it out for you...it will put your mind at rest.

Lots of love and best wishes

Christina xxxx

yo207 profile image
yo207 in reply to Cnmart

Thank you Christina. I will! Be well.❤️

Iwillbeatit profile image
Iwillbeatit

Don't have your experience only on first cycle of avastin but had sinus pain sore nose and headaches which I did not have with previous type chemo so think it's side effects

Very similar re Avastin for me, sending lots of love, hope scan goes well. X

yo207 profile image
yo207 in reply to

Thank you so much. God Bless. ❤️

JayGeeCee profile image
JayGeeCee

Have been having Avastin since last May, main side effects for me are raised blood pressure and sore, bloody nose. Recently my right hip has flared up, not sure if it’s Avastin related as I’ve had hip and back problems for a while.

On the plus side, it seems to be doing its job as last scan in November showed no new cancer growth.

Tell your oncologist your symptoms just to be safe. Hope your scan goes well🤞🏻🤞🏻

Sending positive thoughts

Joy

yo207 profile image
yo207 in reply to JayGeeCee

Thank you Joy and all of you lovely ladies. It helps so much to have this outlet to compare notes. Good luck and God Bless is all.🙏

Cheryl4677 profile image
Cheryl4677

Sounds like the Avastin. Dry mouth and nose, small nosebleeds most mornings and aching joints. I also got ocular migraines like a kaleidoscope effect. Not particularly painful but distorted my vision for half an hour or so. My face in the mirror looked like a jigsaw puzzle! X

mrstadpole profile image
mrstadpole

These sound like side effects of Avastin.I have experienced some but not to the effect that some ladies have.Medics will tend to dismiss this though! Take care Ann x

LittleSan profile image
LittleSan

I had all the side effects you mention on Avastin! Hope your scan goes well. Xx

TudorPurr68 profile image
TudorPurr68

Hello. I had ovarian cancer, chemo and surgery. I'm in remission and am now on Avastin and I have bleeding gums and massive neck shoulder and upper arm pain, both arms. I wish you all the best with your scan. I worry all the time that the ca is back, this is normal. Jayne.

yo207 profile image
yo207 in reply to TudorPurr68

Thank you! If you don’t mind me asking how long have you been on Avastin? I have been on it for six months and now is when these effects are surfacing. Good luck to you. Stay positive. I was in remission for 4 years 3 months before my first recurrence. I hope you never have to experience this disease again!🙏

Lily-Anne profile image
Lily-Anne

Avastin gave me headaches but I also had sore and bleeding gums which I didn’t associate with it but reading the comments maybe I should have.

Try not to worry, stress will stiffen your joints and then it’s easy for your mind to wander

LA xx

yo207 profile image
yo207 in reply to Lily-Anne

Thank you so much. This disease is a monster. I try to live every day without thinking about it but sometimes it’s very difficult to that. Good luck to you.🙏

broadgodd profile image
broadgodd

Praying you get through this, tumeric and clove powder and cannabis oil are a god send , om tat sat, eternity knowledge and bliss,

jools53 profile image
jools53

ok im 3rd time reacurence in 4yrs! I can asure you its the avastin! sinus head neck shoulder pain,thank god im off it after 24,and cancer back fast ca125 360,now ready to start cisplatin,im not sure avastin done me any favors,that's my opinion , good luck xx

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