I was diagnosed with stage 3 ovarian in feb 2017. I had 6 sessions of carbo platinum taxol, debulking surgery half way through treatment and then had maintenance therapy of 13 sessions of Avastin! For now I’m doing well and bouncing back nicely!
Antibody out there have have a similar regime of treatment and how are you doing now?
Hi Ktca
Yes I had the same..diagnosed stage 4 summer 2015. Although it seems mine is back in 3 lymph nodes- I have had a year since being told this and still not on treatment and not symptomatic.
Good luck! Hope you go from strength to strength! x
Hi Lyndy
Thanks for replying! I wish you very very much the same good thoughts!
Sorry to hear it’s back but fingers crossed that they will come up with a treatment that will be successful for you again!
Thoughts and best wishes!
Would love to hear how you are getting on if you feel up to it! So please keep us posted! X
Hi Ktca,
Yes, I am 3c and had neoadjuvant chemo with Avastin, debulking , rest of the chemo and then more Avastin. My diagnosis was October 2016 and you can check out my journey by reading my profile.
I enjoyed 3 months is Spain September to December 2018, and came back for Christmas. There’s been some downs as well as ups but I’m still here, the cancer is under control and apart from joint pains from the last lot of chemo, I’m doing fine.
Do you have any concerns? There will be lots of support for you on this site.
Hugs & Luck to you,
Iris x
Hi Iris, you mentioned joint pain post chemo, this is what I've been experiencing, aches in tops of legs which comes and goes! Have been taking magnesium powder once a day which I'm sure helps me! Do you take/do anything for your joint pain? Cheers, Dawn!😀🌻😀
Hi Dawn, re joint pains.
I was prescribed Naproxen 250mg 2 twice daily on 4th Jan by a GP (the Oncologist was no help) - but you need the one that is ‘gastro resistant’ if you have any digestive issues. Although I am still getting pain so it’s not that effective.
I don’t know what the answer is yet. I am going back to my GP in 2 days’ time. I haven’t tried magnesium powder but if you can get into a bath, a soak in a warm bath with Epsom Salts gives some relief. Heat generally helps a little.
Check out past posts for other ideas - and keep worrying your Health Professionals until one finds an answer; it’s what I intend to do!
If you find anything other than magnesium please pass it on!
Iris xx
Ps do gentle exercise to keep joints moving too
Hi again, I've been taking the magnesium powder for just over a week now and later today I noticed a definite improvement in the decrease of the joint pain! I've also started taking collagen gummies too, for skin, hair and muscle, so I'll let you know how that works too! A friend at church who had cancer put me onto magnesium as she found out from someone else! Hopefully it will work for you too, so it I were you I'd give it a try!xxxDawn!🌻🌹🌺😀
Hi
Glad to hear you’re bouncing back after treatment. I was diagnosed stage 4 June 2016 had the same chemo, debulking and year of maintenance Avastin finished Jan 2018 . Due a scan end of the month, fingers and everything crossed but CA125 been steady at 8 so hoping all good.
Love and best wishes Kim x💜
Fingers crossed for your scan cx
Can relate, same here Kim. xx
That’s brilliant, good luck with your scan 🤞
I was the same, diagnosed stage 3/4 Feb 2017. I had carbo/taxol 6 rounds, then surgery, followed by 2 more rounds of chemo. No Avastin. I have been feeling fit and well and optimistic ever since, but at my recent review appointment I was told my CA125 is now over 100. Very disappointing, now waiting for a scan to see what is there.
Hi, that's good news that you're doing so well.
I had the same chemo but weekly for 18 weeks. It was a trial. That was in 2013. I was stage 3C and still here to talk about it.
Wishing you continued good health. It's definitely possible.
Best Wishes, Zena xx
Thanks so much for all your replies! It is great to have a platform where we can talk about our horrible cancer experiences and rejoice in each other’s strengths and resilience that has brought us this far along!
I Found I suffered a lot from joint pain and headaches, congestion, also due to the Avastin!
The joint pains are not as bad as they used to be, as I am now off Avastin since last August! They haven’t totally gone but have improved which makes each day seem a little better!
There is a light for now at the end of that horrible dark tunnel of Chemo and illness!
I think of you all who have had similar experiences and hope there will come a time when ovarian cancer is preventable and no woman will have to go through this horrible disease!!
Blessings, hugs and sweet thoughts to you all! X
Hi Ktca,
Good to hear you are doing well. I am still very new to this experience but my story so far seems similar to yours. I was only diagnosed in May this year, stage 3 high grade serous cancer. I became unwell so quickly and suddenly, barely could get my head around it and diagnosis was a shock. I've had 4 rounds of chemo (carboplatin and paclitaxel), then debulking surgery in September and I just had my 5th chemo yesterday. Thankfully I don't suffer much with side effects. I will receive Avastin after the 6th round. It's good to hear that you are well. XK
Newly diagnosed stage 3
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39 years old, PPC, stage 4B, Lymph Nodes enlarged
