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Fluids, blood transfusion and CA125

Hi lovely people.

I’ve had fluids today in hospital as well as yesterday as I’m dehydrated. I was supposed to have cisplatin yesterday but had fluids instead.

I’ve got to go next week for a blood transfusion. Then hopefully I can have that horrible cisplatin.

My CA125 is now 700.

It’s gone from 4000 to 2000 and now 700 so I’m pleased about that.

To think a month ago I was told there’s nothing more they can do for me and to go home to die.

Well I must be a ghost as I’m still here. I’m eating and sleeping well. Struggling to drink for some reason, hence the dehydration.

I hope all you lovely ladies are doing ok.

Love to you all. Xxxxx

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My goodness Suzanne, that CA125 drop is astounding.... get yourself rehydrated for that Cisplatin in, its clearly working. Think about you so often love 💕, Marian xxxx

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Hi Marian.

Thank you. Yes I’m really trying to drink more now. The horrible cisplatin must be working - unless it’s the other stuff I take. 🤫

I’m so pleased it’s going down. Three weeks ago I felt I’d had enough but I’m keeping fighting this horrid disease.

I hope you are doing ok.

Sending lots of love xxx

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Hi Suzanne, so lovely to hear from you. I have been thinking of you , hoping that you are doing better. Great that your ca 125 has dropped so much.. eating and sleeping sounds good . You are an inspiration and a very brave lady . Sending love and gentle hugs

Sheila 😘😘😘xxxx

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Aww thank you Sheila.

It’s great that it’s going down. Puts more fight into me. 💪🏻

They wrote me off but I’m still here.

I hope you are doing ok.

Sending lots of hugs xxxx

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Hi Suzanne, what great news! Get fit for the fight again...you are a brave and inspirational lady, as the others have said! 🌼🌻🌺🌼🌻🌺

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So happy to hear that you are doing better 😊 That’s a great drop in your CA125! Sending hugs and best wishes 💪

xx Gina

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Hi Suzanne it’s so good to hear you’re doing much better now and fantastic that your ca125 has dropped so much in response to the chemo!

Keep eating and sleeping well and I’m sure you’ll feel even better after the blood transfusion. Keep your pecker up lovely lady you’re doing well and your positive attitude is inspirational 💖

Liz Xx

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Great to hear you are doing well.........long may it continue. Lyn x

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Hi Suzanne,

I think of you all the time, so it’s lovely to hear from you. Can’t believe your CA125 has dropped so much - that’s amazing! Are you still being treated at your original hospital, or did you move in the end?

Guess you’d better put that sheet over your head and practice the “Woooo woooo!” ghost noises...looks like you aren’t going anywhere!

Vicki x

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My goodness Suzanne that's a huge drop in CA-125 you must be feeling so elated.

Keep up with the hydration, Cisplatin is a bit tough on the kidneys. Good luck with the transfusion, is it to help your haemoglobin or platelets? Good luck with it anyway and get some more the harsh stuff inside you.

Good to hear how you're getting on.

All the best!

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Excellent news. Sending love xx

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Hi Suzanne, great news about the CA125 drop. I do hope you can get rehydrated and topped up with some new blood ready to complete the cisplatin. We’re all thinking of you - long may you continue your courageous journey.

Love and best wishes Ali x

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Oh well done Suzanne! It’s been a hard road for you but glad the. Ca125 is dropping and with any luck you will get a bounce from the blood xx

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Wonderful news Suzanne. I'm thrilled for you dropping your CA125 after those bast**ds told you what they did. Next time you see him/her give them a big fat raspberry. Keep up the good work my love xxxxxxxx

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So pleased that the doctors were wrong. Sending you big hugs xxx

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oh wow good drop in CA125! Cisplatin is the pits isnt it but sounds like its working! So pleased for you. Keep doing what yr doing, well drink a bit more too ttho im one to talk, always being told off for not drinking enough lol. Hope your ok. Kathy xx

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Great to hear from you Suzanne , the drop in ca125 is brilliant .Keep on going lovely you can do this . XxJulia

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Well done you!! Your body is doing you proud! Keep up the strength and will!!

Thinking of you always much love Jackie O xx

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Wow Suzanne, that’s great news re your CA125, what’s an amazing drop 😊. Keep going lovely we are all thinking of you and sending good vibes your way. Every little bit helps xxxx

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hi Suzanne , so nice to hear from you. I keep thinking about you. So pleased that your treatment is working! Don't stop the fight! Keep going my lovely friend. Don't forget you are my role model.😊💕

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I think that is a great result but do try and drink anything at all non alcoholic of course and stay hydrated. You will feel much better after the transfusion. Jelly and ice cream has fluid in it, ice pops, anything at all that you can think of, all the best

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That is the best news Suzanne! I’m so pleased for you xx

Get yourself fighting fit and get the horrid cistplatin in you to fight those beasties and zap them to infinity and beyond!!

Still makes me angry to think about what that horrible doctor said to you!!

What an absolute trouper you are! So so pleased xx

Keep On keeping on xx

Hugs and much love Bev xx

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Hi Suzanne, Glad to hear from you and with some good news , great about the 125 like you I've been told no more opinions but I have a second opinion next week so will see.

Take care and hope you get good results from the Cisplatin ..love Lorraine xx

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That’s great you’re getting a second opinion. Someone will help you. I was told I was going to starve to death but I became able to eat. Never give up. I’m thinking of you. Let us know how you get on. Sending you loads of love xxxx

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Oh Suzanne that is a tremendous drop. Praying for strength and a continued drop in those numbers for you. Xoxo nancy

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See no 🔮 there’s plenty of time ahead for you yet. It’s a year since I finished chemo and look at the doom and gloom back then! I wrote a post based on their bad news and although I’m not exactly first choice for Top Sante magazine I am still limping along.

Your CA level is much better that must help. I’m having mine tested today. I do hate those numbers.

Good luck with blood transfusion and chemo. Am always thinking about how you are so really pleased to see update

LA xx

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You go girl! Fantastic drop in ca125, keep drinking and let that cisplatin get it down even more. All the best 🌹

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Susanne i understand the good news after the worst. I was sent away in February with a CA of 1400 and told there was nothing more they could do. I was so poorly with ascites but they offered no treatment or solution. I found another hospital. I was in for 4 weeks. I started gem and cisplatin. The next six months were hard. Another stay in hospital along the way with a severely infected drain but.....ive just finished my treatment. My CA is 60 and i find out Thursday if i can start a PARP inhibitor. I tell you all if this because things can turn around. Its a hard slog but you can do it Suzanne xx

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Gleedy, that’s such good news. Your tenacity paid off. The Gem / Cis has brought your CA-125 right down. Good luck about the parp inhibitor on Thursday.

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Thank you x

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That’s fab news, Gleedy! I was wondering how you were doing. With a drop like that, a PARP has to be worth a punt, doesn’t it?! Although I’m on weekly taxol now, I’ve been told that I can have a platinum therapy next with a view to a PARP if I have a good response.

There’s hope for us all if we look hard enough.

Vicki x

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Its good when there are still options. I hope all goes well. Im hoping in my 6 week gap of no treatment nothing has changed so i can have the PARP medication. Been a worrying 6 weeks xx

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Hi Gleedy.

Wow you went through it. So similar to my story. You’re doing really well and you will get the PARP.

Yes things can turn around. We must keep positive and keep fighting.

Sending you hugs xxx

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Good News, Cisplatin is Working!xxxDawn!😀🌻😀

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Wonderful news, you are so brave and strong- keep going, we are all behind you. Drinking is a drag. Bottled Evian? Expensive but nice.... Nicola xx

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Well done! Keep positive, the doctors don’t know everything and it is our job to keep embarrassing them when they give up! Pam xx

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So happy for you and it's great to read a good news post so thanks for sharing xx

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Delighted to hear your good news, Suzanne, so pleased for you. Perhaps we should start thinking lovely cisplatin not horrid cisplatin though that might be pushing it just a little😁 sending love and 🌺🌼🌸🌻🌹 Jo

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Wow! That CA125 drop is brilliant, and like what the others have said, I think about you a lot and it’s great to hear from you and that, besides the dehydration, you’re doing so much better, I was really concerned about you a while back but I’m so pleased you’re now able to eat and sleep and are building up your strength. The transfusion will make you feel stronger and the fluids will really perk you up in readiness for the awful, but necessary, Cisplatin. Keep doing what you’re doing lovely somethings working, hugs and love ❤️Xx Jane

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Cisplatin is hard on the kidneys , so drinking is an imperative . Buy it's tried and tested and usually does the job ! I have had it twice , exhausted me , but kept me going ! Keep up the good work .

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I look for your posts Suzanne and was so happy to read this one. No one is a number and your treatment— horrible and all- is working. I’m so pleased you’re eating. Do you feel your strength returning and can you focus on eating all things to help it continue?

I am not a drinker/ hydrater. Don’t know why but sipping water never cut it for me. But as we OC ladies know, liquids are essential. So if it helps, I get a juice I like (vitamin water which has tons of good vitamins in it) about 2 fingers worth in a cup of water and I stand at the sink and drink it at once. Later, I make a giant cup of tea (I’m believing papaya leaf tea will help my platelets which are going down on the PARP) and then go to bed with a tall glass of waster to take pills. Maybe drinking at once instead of sipping is what you might try to focus on for hydrating.

I’m so hopeful this gets you back to functioning normally so you can complete the treatments.

Hope Antony is being attentive and you have what you need as you recover.

Love, hugs and support.

Judy

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Well done 🙏 thank god it’s turning a corner, ho girl 💐💐💐💐😘😘

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Ooh well done on the ca125! Hope the fluids and blood transfusion make you feel better.

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Brilliant Suzanne, it’s not so awful putting up with horrible chemo when it’s working!

Glad you are eating well and hope you can drink more going forwards. Take care

Love

Madeline xxx💖

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So lovely to know that cisplatinum is helping. Never give up hope.😗

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Suzanne I am so pleased to hear your CA125 has dropped, get drinking sweetheart, I am on Cisplatin and understand you’ve got to stay hydrated.

Hopefully after transfusion you will continue to kick the beasts backside.

Hugs Ellsey xx

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So heartening to hear about your steady recovery. You are made of strong stuff & don’t you forget it ! We are all wishing you so much good progress .

Mary x

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Fantastic news Suzanne. Keep going lovely lady. I am thinking of you.

Lots of hugs and encouragement.

Lizziebee 💐

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That is great news Suzanne try and drink anything that will help to hydrate you so you can have your next treatment hope the CA 125 continues to fall for you xxx Clare

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Suzanne...it's wonderful to hear good news from you! You're fighting it like a pro and getting some good results. So happy to read this and glad you sound upbeat again. Thank God the Cisplatin is doing its job. Go girl go! Xxx

Maryanne

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Thinking of you and your inspirational poems. X

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So pleased you are able to eat & are sleeping. Amazing news on the CA125 hoping you well enough for the next chemo xxx

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Great that you have had some good news regarding your CA125 falling, it must have been welcome news after what the doctors told you. Hope that the fluids have helped with the hydration and you can start back on your treatment soon. Take care, with very best wishes Jo xxx

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Great news, Suzanne! You're a fighter and just keep going!

XOX

Marisa

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Suzanne- so glad your CA125 is plummeting!!! Well done. So hard to keep the head where it should be when the body feels so crappy. Try lemon in your water. It may help you drink more. Keep up the fight!

XX Carol

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Only just logged on after seven weeks in hospital and so delighted to hear your news . Fantastic ! Keep up the fluids . I found hot stock really good ( Marigold ) .... Everything crossed X

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amazing ! your in a good place , worth all the crap.Well done keep it going girl,would you say its a cisplatin is one off the hard ones? even so good outcome jools xxx

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Hi Suzanne, wandered how you doin??

Love Jackie O xx

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