Rubraca

[Tameacob]

Hello everyone,i am going to start rubraca next week but i am not brca positive nor platinum sensitive anymore feeling worried,any advice?!!

[Jessica-DianeB]

Can’t advise I’m sorry. Just keen to know your circumstances to access the drug.

I’m BRCA neg plat resistant too.

Hopefully you get some responses soon xx

[Tameacob in reply to Jessica-DianeB]

Hi jessica i live in united states my oncologist after doxil failure suggested rubraca ..i used to be platinum sensitive but not anymore he said it has a very small chance to work but worth trying as i ran out all the other options except weekly taxol and my insurace company approved

[Jessica-DianeB in reply to Tameacob]

I wish you all the best with it, hopefully it will do the trick for you. Good luck xxx

[Tameacob in reply to Jessica-DianeB]

Thank you honey.. my best wishes and prayers for you xx

[LittleSan]

I don't have any sage advice but hope it does the trick. Would you have access to a second opinion/clinical trial? Xx

[Tameacob in reply to LittleSan]

hello Sandra thank you for your reply dear, i had a second opinion and they suggested weekly taxol but my oncologist never mentioned that.. and i am also looking for clinical trials it seems to be very complicated thing ..wish you all the best dear, god bless xx

[LittleSan in reply to Tameacob]

And to you my friend. Xx

[VickyEm]

Hi

I believe rubraca is known as Rucaparib in the UK.

I have low grade serous oc and have been on this drug for 18 months.

I am not brca. (But I do have a variant of unknown significance) I am probably not platinum sensitive (due to being low grade) . the drug company let me have it for free, so they can see if it works as well on ladies who are not brca as it does with ladies who are.

I thought I may as well give it a go and see if it works for me. My onc is happy that it is keeping the disease stable so I will continue to take it for the foreseeable future.

Made me quite sick at first, but found taking it after food helped. Plus I was very tired. But seems a less invasive treatment than chemo.

I guess you will only know if it will work for you by trying it.

I really hope it does and look forward to hearing how it goes.

Vx

[Tameacob in reply to VickyEm]

Hello vicky I apologize for my late reply I’ve been in a severe pain and on fentanyl patch that kept me drowsy and a sleep all day long ...thank you for your reply it gave me some hope and hope rubraca keeps your disease under control and stable ..i have started rubraca 10 days ago 300 mg 2tabs twice a day it made me feel tired sick and nauseated and have zero appetite with vomiting anything i eat or didn’t eat and lost a lot of weight..i have an appointment with the oncologist on Monday so lets see what will happen ..my best wishes for you honey XO