I hope you are all doing ok and for those of you who are struggling and worrying etc I’m sending you all a massive hug.
I had a sigmoidoscopy yesterday. After drinking two litres of frogspawn and snot smoothie and going to the toilet 16 times, I arrived at hospital for the procedure. Wish I’d had a sedative as offered.
I really needed the gas and air though. Good news though, the thickening wasn’t there. I do have diverticulosis though but that’s not serious.
So I’m ok at the moment but feel a bit in limbo when not on treatment. Fingers crossed this disease stays away longer than it did before.
Love to you all. Xxxx
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Suzanne333
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Yes I’m relieved it was nothing bad. Was an unpleasant experience. I had to wear paper shorts with no back. That made me laugh. I should have taken a photo.
I'm fine thanks Suzanne. It pains me to read so many sad stories. Some days I just can't read any more because I feel I need to get away from cancer for a few days. It's on TV all the time as well. Other days I talk about it a lot. It depends on how I feel. Once you have it there's no escape, if you know what I mean.
Anyway, enough self pity. I'm doing really well and just wish I could make everyone else better in some way. I think about you all, particularly when I'm going to sleep.
Aww Zena. I know what you mean. I think we all feel like that. I feel well so I sometimes actually find it very hard to believe I’ve got what I’ve got. I sometimes think have they got it wrong. But I know they haven’t. It’s definately really tough psychologically. I too at times don’t want the thought to exist but there are reminders everywhere.
This site is so supportive. I go on the Facebook ovarian cancer site sometimes but find here is where I prefer.
Thanks Suzanne. I do want to give lovely ladies support and encouragement and let them know there is hope for the future but at the same time I'm so afraid of saying the wrong thing. Reading a post a couple of days ago about what people say and how it makes you feel made me even more nervous to post things. The last thing I want to do is upset anyone but in saying that everyone has different feelings and what might upset one person could help another. It's so difficult when you suffer from anxiety. I don't generally have anxiety only in upsetting anyone. I couldn't bear to think I'd hurt someone.
It's amazing what I can say when I've had a couple of rums, it frees my mind to say exactly what I think. Luckily, I haven't got a cruel nature or there'd be a few people not too happy with me. (I haven't had a drink before writing this lol)
I've never tried the Facebook site and don't think I'll try it. This site is very educational I can't begin to tell you how helpful it's been.
I've had a phone call from Great Ormond Street Hospital by the way. I'm going in May to discuss the BRCA situation.
Eeew Suzanne was it Kleenprep? I had it for colonoscopy...it wasn’t my finest afternoon but found a whole raft of posts on internet from people who had also suffered...which made me feels little better.
Hi Lyndy. It was movicol prep stuff. Putrid. Yuck.
I read about people saying how horrible it would be. I thought I’d be ok. I remember moaning and groaning and then apologising for the wind that followed. The nurse said gonfor it , so I did. 💨🤢xxx
That sounds more like a colonoscopy than sigmoidoscopy.. I've had both and was only given suppositories on the day for the latter, but something horrible to swallow for the colonoscopy. If there's a next time, ask for Picolax instead - its infinitely more drinkable than the one they gave you and nowhere near as much of it...
You always makes me smile! Well done for putting up with the taste! I'm so thrilled that it's nothing sinister. Enjoy your post treatment. We can maybe go out now for lunch, when you feel up to it. Lol take care. 😘❤️
I had to have a gastrographin enema yesterday to check the join in my bowel in preparation for a possible stoma reversal. That was bad enough but at least I didn't have to drink what you had to!! I cried the whole way through which just seems to be par for the course with me now!!!!! I start as I walk in the door of the hospital and don't stop blabbing until I'm on the way home again. Glad your news was positive x x
Love the description of that drink sounds like something from Alice in Wonderland!! Here’s hoping you never have to drink it again, or any of us for that matter. I’m doing the limbo thing at the moment having a break from chemo but 3 month check was cancelled due to beast from th east 1 however my onc phoned me the following week and as I have nothing to report we agreed another 3 months unless I get any symptoms.
I do feel a slight sense of freedom so have booked a trip to Venice next month and am striking a few other things whilst the irons hot!
Here’s hoping things stay stable for a very long time and sending love and hugs x
Ah Suzanne--had the colonoscopy and the preparing must be very similar the way you describe it. GLAD to read the results (although you now need to stay away from popcorn if it was something you ate with your dx from the procedure) but a procedure with nothing serious is what is nice to read and hear. Here's to a very long remission or NED just stays with you! oxox Judy
Your post made me laugh I can fully relate to the hideous movicol, had to hold my nose when swallowing it...I found the procedure ok but did have the sedation which helped! My bowel was also clear just this damn OC for which I’m just beginning to start treatment fingers crossed.
I’m glad your bowel was fine and wishing you a healthy and happy onward journey and sending virtual hugs your way,
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Post Carbo/Caelyx results
Help from olaparib ladies if possible !
Update on my misery 😕
