Hello, it’s been a while since I’ve posted. I was diagnosed in March 2018 with 3c high grade serous cancer. It was in both of my ovaries, I had 4 rounds of chemo and then debulking and then the last two rounds. I’ve been so lucky I think as although some activity was shown in some lymph nones in my pelvis in 2020 I was stable until 3 weeks ago.
I had a PET scan as my numbers kept fluctuating between 129 and 359, I got the results two weeks ago. The nodes in my pelvis are now 6cm, I have a node by my vena cava that has grown. A new node in my neck and it also on the outside lining of both of my lungs. I was incredibly shocked to find out how fast this had happened. My previous CT scan was only 3 months before and showed I was stable still.
Everything has happened so fast, I was told this on the Tuesday, had a picc line fitted on the Thursday and my first treatment of carboplatin only on the Friday. This first chemo literally knocked me out in the chair. I don’t remember any of it really. I struggled to eat or drink for the next four days and I couldn’t stop shaking. I was hot and cold and didn’t think it was right so I called the emergency number and they saw me straight away. To cut a long story short the said that they think the dose they gave me was too strong for me to handle. I’m hoping that when I see the oncologist later this week they will lower the dose.
I was wondering if anyone else as had this happen and what did they do. Also is there anything else I can do to help myself get through this. Any tips or ideas I’d be so grateful for, to be totally honest I’m really scared. xx
I am so sorry this happened to you…hopefully if they get the dose right you will find it much more doable ( mine was pretty easy) . It’s really bad that they miscalculated your dose and I would be up front with how much this has impacted you and that you have considered whether or not you can get through it. It’s up to the hospital to reassure you that they will get it right, give you protective premeds and potentially a slower drip to help you feel more confident xx
I appreciate your reply so much.
You’re right I do need to let them know how I feel and how it effected me. I’ll speak to my consultant on Wednesday and hopefully she reduce the dose and be able to reduce the side effects next time.
Who knows it might be pretty easy for me as we’ll need time.
Hugs Tay xx
What Lyndy said about the pre meds is also vital. I had a bad reaction to one cycle and after that they successfully regulated my dose AND the speed in which it was delivered, plus anti sickness IV. So sorry about your recurrence and the fact you’re scared, we’re all scared in peaks and troughs. I had a scan last week and I’m dreading My results because I’m sweating again and have a weird cough. Yes I know it’s hot and I know there’s lots of tree pollen around!!! Anyway today the sky is blue the sun is shining, I’m in the country and it’s great to be alive- whatever is around the corner. Good luck and try to stay positive. X
Thank you for your reply, it’s great to know that they regulated your dose and it was easier then.
Your right it is scary and I’m sure we all feel the same at different points.
I do hope your scan goes well and I’ll keep everything crossed for you. Please let me know, if you’d like to how you get on.
Hugs Tay xx