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My Ovacome
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I am in the INOVATe Program

My cancer has reoccurred for the first time, I am stage 3c and my Oncologist has now put me on Caelyx/Carbo which I started yesterday, so far so good, and I have just consented to go on the Australian INOVATe Program at the Kolling Institue at North Shore Hospital which is also in co-ord with the Garvan Institute. In this program, they get a biopsy and dissect it and try an find out why it is mutating and then decide which treatment would be the best, other than that it goes into a big pool with other peoples for future treatments to be made. So your cancer treatment is individually tailored to your needs and not a one size fits all approach. I am really praying they have an answer!

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Good luck! It sounds very interesting. I hope it helps you out. Vicki x

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Good luck! This is the way of the future!

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Thanks, Vicki and January, I believe it is the way of the future, on an individual level, as that is the difficulty with Ovarian Cancer, every woman's cancer is different and treating them separately is yielding results, Ros

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Hi Rossie. Like to say hello and to wish you all the best on Carbo/Caelyx I have just finished 8 treatments of this combo with good results hope it works for you.

I have also had my tumor tested for individually tailoring. always good to see that research is being done...Take care and Merry Christmas Lorraine xx🎄🎄

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Hi Lorraine, thanks for that, I am so glad to hear you had good results done with Carbo/Calelyx that makes me feel a lot better, it seems you just have to find the right one that suits you. Do you know the results of the research yet? They did say to me that they may be able to direct me to a treatment that would be suitable if all went well or it may not yield any immediate results, but in the long term, it would be beneficial to everyone. Merry Christmas, Rossie xxx

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Sounds fantastic-good luck

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Thanks Sherryn!

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That is great news. Would you mind keeping us posted as to what the find out and if they keep you on Caelyx/Carbo or if they switch you if they feel its not tailored to what they find out (or if they keep this regimen till the end of its course then do something different should you recur again? Very interested and hopeful for you! ox

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Dear Maxjor, as that this cancer has reaccured for the first time they put me on Caelyx/Carbo and I have only just started the third day in, but with the anti nausea drugs they have given me, I am feeling ok, and great nights sleeps as well, so I am happy, at the same time as starting this Chemo I signed up for the INOVATe program where they are now going to take a portion of my tumor as I needed to start Chemo straight away, I had to start the Caelyx/Carbo, I have two Oncologists and both are on the team involved in this huge program, but as it requires so much intense research it could be months before an answer is found, so we are hoping the Caelyx/Carbo will work first and foremost and have it stay away for a for as long as possible which will hopefully be years and then if or when it reaccures which they say it will at some point then they will have a more targeted treatment regime for me. I will keep you posted. In Australia, the government has just come to realisation, just over the last few years how bad things are with people that have cancers, like brain, pancreatic, ovarian, cervical, and rare cancers, so they are now putting in huge funding into research and supporting trials and much more in order to find solutions for these cancers.

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Dear Maxjor, The research in Australia is called the Australian Medical Research and Innovation Strategy, and Greg Hunt on TV program this week on TV announced prior to the budget, that they would be funding the Universities 2 billion less in this next budget because it would be allocated to education, hospitals and research into cancer, in particular, ovarian, cervical and brain and pancreatic.

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Hi it is interesting your post I live in Queensland and I will be most interested in your findings in your research. Please keep posting. X

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I hope that the chemo works for you. Do you know if people in Queensland are eligible for the program? There doesn’t seem to be much available here.

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The three Institutes that are running these are the Kolling Institute, St Leonards, NSW, Garvan, Melbourne, Peter MacCallum Cancer Centre, Victoria, all the information is online westmeadinstitute.org.au/re... I could not see why someone in Queensland could not be involved in the program, but I do not know. I will keep you posted!

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Sending positive wishes for a good outcome, Rosie. 🤞

Happy Christmas, love from Solange 😊🎄🥂🤞

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Hi! I have tried to get on this study (it is being rolled out through a large number of hospitals now) but have been informed that to enroll I need to be clear of chemo for six months (I'm not). So frustrating!!!!

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