Hi lovely ladies, wishing you all well from my bed here in gloomy Herts. I haven’t posted about myself for ages but still been following and answering when I can. Have to admit I had my head in the sand and didn’t come on so much over the summer while I was treatment free and enjoying the good times!
Anyway, the only reason I am still in bed is I started back on chemo yesterday - 4th line, Cisplatin infusion plus oral etopisode (the scary sounding Rotterdam Regime!) and the steroids plus overactive mind kept me awake literally til 5am so not long awake today. Had forgotten how evil they are!! But so far no sickness so fingers crossed. Has anyone had this regime, would be interested to hear how it went? My onc says he’ll try it for 4 weekly infusions with the tablets and then see how my Ca125 is doing - it was 213 last test 2 weeks ago, highest it’s ever been (it was only 98 when diagnosed over 3 years ago)
Just listening to Gloria Hunniford talking about her daughter Caron Keating who survived breast cancer for 7 years but died aged 42. Very sad but inspiring as she well outlived her original prognosis and her mum and family keep her memory alive with her foundation and the memories of the love they shared. I’m 52 so neither very old nor very young to have OC, I do get days I feel robbed of my future and so weary of being in the treadmill, but also days of immense gratitude for the life i’ve had, my beautiful children now 21 and 19, that I have seen them to adulthood and they will remember me.
Oops, going on a bit, meant to stick to the point will have to blame chemo brain! I was also interested in immunotherapy, particularly Avelumab as I know there have been some hopeful results using this drug for OC in trials but it’s not licensed for it yet. Disappointed to learn trial no longer recruiting in London but anyone know about others coming up?
Better finish there and get myself up! Lots of love and hugs to you all, you are absolutely amazing!
Ps photo is of me and my daughter at a music festival in the hazy days of summer!