Hi all. I went for my oncology appointment today and my oncologist told me I'm marvelous. My CA125 is 7 and has been for at least three years now. No signs of recurrence which is fantastic news.
I asked what would happen if I made it to five years clear and she said I'd get a golden handshake so I said it would be goodbye then, one way or another and that gave us a bit of a laugh. She said she'd had a couple of ladies that had recurrence in their sixth year but if I got to five years it will be pretty unlikely to recur.
In saying that I'm having a scan next month just to make sure. That made all the worrying this week a waste of time. I don't know about you all but I always go through the I've definitely got it back, I definitely haven't got it back yoyo.
Hope all is well with everyone. Zena J xx
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No, I go every six months. They say six months but it's usually nearer seven. There's always a long wait because they get behind with appointments but I go prepared.
My oncologist told me she had to tell a man that she couldn't spend an hour talking with him as she had other patients waiting. He got upset so she got upset then everyone is upset. It must be hard for them dealing with so many difficulties through their day.
Because she was running over an hour and a half late I asked when she would get her lunch. She said that wasn't important and in any case they have meetings all through lunch and she'd already had to apologize because she wouldn't make it.
They waiting room makes for interesting people watching. I'm always surprised at how upbeat most people are.
Don't know why I'm telling you all this, Zena, as it has nothing to do with your question but I've typed it now so I'll leave it.
Dear Zena- what is your secret? You are certainly an inspiration to us all!!! Keep doing what you are doing. Stay with us. The yo yo thing is what we all go through. Hugs, Carol
Thanks Carol. I have no secrets but if I did I'd bottle it and send it to everyone. My trial nurse is certain my attitude is what's keeping me going. Best wishes Zena xx
Hi ZenaJ, I am very happy for you but like my mum always said don't count your chickens till they are hatched. I would wait till you have the results of your scan. I am sure everything is ok but with the scan you can be 100% sure.
Thanks Cindy. I'm always prepared for bad news but I'm going to relish the good news for the time being. I'm quite good on accepting bad news so even if it goes that way I'll take the medicine and carry on, like always. xx
Hi Zenaj, it is excellent news but I am a more cautious person & because you still have a scan to come. I wouldn't want you to be disappointed. Good luck & I wish you all the best take care Cindyxx
I'll let you know what happens, Cindy. It can't hurt to be a bit cautious. I think it's because I haven't had a scan for a few years. I'm not going to worry until I need to. I'm a bit lucky like that. It is very difficult for someone who is a worrier or has anxiety. I've always been a cup half full person. The only thing I know for sure is that worrying won't make any difference to the results but it will affect my life but for some they just can't help worrying.
I'm rambling now, Cindy. I hope you understand what I mean. All the best, Zena xx
Hi Zenaj, I am very cautious, very negative & if anyone is going to poo on your parade it will be me. Not because I am a nasty kind of person but just see danger in most things. Take care Cindyxx
You haven't pood on my parade Cindy. You're entitled to say what you want to say. We're all different and as my mum used to say 'thank goodness we are or it'd be a very boring place'.
Hi Zenaj, yes, my mum had that saying too. She was very superstitous & a lot of her idea have became mine.
I think having symptoms of oc for 5 years before they picked it up makes me even more cautious. Sadly I don't trust GP & have got into ai bit of a habit asking lots of questions just in cause they made a mistake.Take care Cindyxx
They should certainly be monitoring you to find your secret .👍 Great post gives us all hope . 😀
Totally understand the yo yo feeling . Have my 9 month post chemo oncology appointment today . Fingers and everything else crossed 😩 Better try and get some sleep !
Thanks Kim and good luck for today. It's a funny feeling when you go for that appointment, something I can't explain, so I just pretend to everyone that it's 'only a check up' but we know it's much more than that to us. Best of wishes, Zena xx
Hi zenaj, really happy for you, I went for my check up and ct results on tues and still clear after 3and a bit years. For the first time I was able to ask what the chances were of it not coming back after 2 recurrences.. she said that the longer I go the better the chances (doh) but I now am shifting my mind set from waiting for the dreaded return to looking forward to getting on with life.
Zena--I love this happy news and I get to read it first thing in the morning which just starts the day off right! I am so happy for you and LOVE that your nurse thinks your attitude has something to do with it....I agree with all you say about how you feel, how you approach your "check-ups" etc. Congrats and may the good times continue to roll! ox
We certainly will Babs, You have such good news also. Mine is only 3C but I'm counting my blessings. Keep up the good work and as you say we'll shake hands together. xx
HI Zenaj , Just would like to add my congratulations with all the other ladies, I do understand your attitude to a positive outlook, I'm on my 5th line of treatment in 3 years and when diagnosed was told I would not see the year out.
I've been worrying for the last 3 years what a waste now I'm trying to live day to day and looking forward this year to a lovely Christmas with family.
Do take care and again great news hope it continues for many many years to come Lorraine🎉🎉 xx
Thanks so much Lorraine. I'm so pleased for you also. You are doing so well. We can't help worrying sometimes though, can we?
I've been lucky enough to see my daughter marry and my first grandchild born and he'll be one in December. I wonder if I'll see him go to college? Of course I will. Maybe even have some children himself. (I mustn't wish his life away).
I've gone past that stage of not buying myself anything because I won't be here to use it. The way I'm buying I've got to be around for a long time.
You'll have a lovely Christmas with your family this year and many more after.
All the very best to you. Zena xx
Hi Zenaj. Thanks for posting - it gives us all hope. I'm sure your scan will be fine, judging by your low CA125. Can I ask what stage you were at when diagnosed and do you have the BRCA gene? Thanks. Pauline.
Hi Pauline, thanks for your reply. I was diagnosed with stage 3C in July 2013. I've never been tested, as far as I'm aware, for the BRCA gene. Perhaps I should have asked about that. It's only being on this site that has brought a few things to my attention. I don't even know what type of tumour I had. In fact, I didn't even know there were different types of tumour. I know it was big though and entwined and stuck to my bowel. That's why I have so much bowel trouble now but at least I still have one.
There's always hope, Carole. Even though I'm sure I'm okay I've got the colley wobbles for the scan later. I think we're all the same with that sort of thing.
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