Morning lovely ladies and thank you to all of you who replied to my previous post.
I had my ct scan on Wednesday and my consultant appointment yesterday. My oncologist was brilliant and very sympathetic. She gave me time to talk and really listened to what I had to say. She had a look at my scan and said that she would need to see the radiologist's report and measurements but that she could not see any ascites, which was a relief. She did say that my hernia is now very large with a loop of bowel sticking through. Unfortunately it is too big to operate. She thought that the patch on the liver looked like it had grown a bit.
She suggested me coming off Niraparib for a week to see if that made me feel any better. I am sticking on the steroids for another week as they are helping so much with the joint pain. She will see me again next Thursday to go through the scan with me
We discussed the next stage if,as we expect, the cancer is back. It would be weekly taxol for 18 sessions in 3 weekly blocks with a week between each block. I explained my worry about going back into chemo so soon after the last time but she said that the anxiety about whether I should or not was likely to affect my quality of life anyway and that at least the taxol was likely to give me further remission. This made sense to me.
I'm exhausted and worn out but I feel so much more reassured after my appointment. My onc also said that she will tell me when she thinks that more treatment are likely to be unhelpful but that we certainly aren't at that stage yet. A reason for hope xx