Hi lovely ladies, as an update, I was admitted (after fighting for a week) on 14th to have my ascites drained at last as I was so uncomfortable! They got 6 litres off which made me feel a whole lot better! My bloods were deranged with a very low protein and I had developed small pleural effusions due to this! As my surgery was scheduled for 20th July I was kept in hospital to improve my nutrition and make sure I was as fit as I could be before the surgery. The staff in the ward were amazing and very attentive!
The big day came and I was fasted for surgery from 2am, by 3pm I hadn't gone to theatre and was feeling awful, dehydrated and shaky due to low blood sugar. The nurse rang theatre to say take me down or put a drip up. At 4pm my consultant came and advised they needed to cancel my surgery due to problems in theatre. I burst into tears as I'd been anxious and stressed all day! He advised he would get me to theatre on Friday so I felt a bit more reassured! Well Friday came and again was fasted and sat waiting, at 1pm was again seen by consultant who cancelled me again as they couldn't get an anaesthetist!! He spoke to me and my family and said I could go home and he is trying to get me to theatre next Wednesday but can't yet guarantee this!
I will find out tomorrow if they can get a team together or not! I am devastated and so angry that emotionally and physically I've been put through this ordeal on top of having this diagnosis! If they tell me tomorrow they can't get my surgery done on Wednesday I'm not sure what I will do! My ascites is building up again and I just feel so emotionally drained!
I intend to speak to PALS tomorrow as my consultant suggested I complain as it carries more weight if it comes from me. I just feel so dejected and I am having to fight all the way to get the treatment I need! I'm not sure about asking for a referral to somewhere else as this might take even longer to get my surgery, any suggestions gratefully accepted x
Sorry this is a long post xx