Having had 4 rounds of carboplatin with caelyx, I was told that it wasn't working in March and since then have been on watch-and-wait with ongoing discussions about potential trials etc.
My CA125 levels rose to around 700 in February but stayed the same level in March during the chemo. Obviously not good but I have just had blood results done through my GP as I was curious as to how bad things were getting (!) and the reading is roughly the same (at 666).
I've not been convinced somehow about the lack of response to the carbo/caelyx treatment and the fact that I'm now supposed to be platinum resistant. Does the fact that my CA125 numbers are static for 3 months mean anything at all? I know that my last CT scan did show some slight disease progression but I really feel that perhaps we gave up too soon.
What do you all think? I'm no fan of chemo but it doesn't make sense to me that 2 months later without any treatment it's no worse - and indeed I still feel fine...
I'm not looking for reassurance - just to find out if this sounds like anyone else's experience. Thank you x