Hey ladies...

I have a question... I have 5 more chemo sessions before my CT scan at the end of March to see where I'm at, believing in NED. :)

For those of you that don't know my story.. I was pregnant the whole time I was having symptoms. They found the tumors during my c section. Therefore, I don't know which symptoms were from pregnancy or the disease!? So I know bloating, pelvic pain, urgency to urinate, feeling full quickly and everything they say online but my question is: Do you ladies have any insight on symptoms that you felt? I have nothing to compare to.

Also, how long after your debulking and hysterectomy surgeries did you feel pelvic pain? I just started feeling some pelvic pain but I have been working out a lot more too.

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  • The pelvic pain could be down to the working out,but if at all worried, seek advice,I had a certain amount,but it gradually went.

    My symptoms were feeling ill,not eating a lot,sickness,tiredness all the time and looking 6 months pregnant at age 57!

    I remember your story and I really hope you and baby are doing well,it was horrendous it happened to you and was discovered in that circumstance,but on the other hand it saved your life and it sounds like you are doing good.

    I really wish you well love

    Carole xxx

  • Thank you for your response. We are doing well. I have had my surgery so looking forward to the end of my chemo.

  • I didn't have any of the usual symptoms or so I thought... I had bleeding constantly and my tummy was large but I just thought I was getting fatter despite trying to diet ... so when they found a mass it knocked me for six .... the symptoms then began to appear I became even more bloated I could not breathe had to sleep sat up then I got loss of appetite I would take a bit of toast and it would turn to cardboard in my mouth so hardly ate at all but still my stomach was huge ... that's when the pain began nothing seemed to make it better .... after the took out the nasty little beastie these symptoms began to aliviate .... hope that answered your question ... my recovery from op took about 8 weeks as my scar didn't heal that well .... hope your doing ok and coping with everything .... big hugs πŸ€—

  • I did not have any symptoms that I didn't blame a large ventral hernia on. Got full easy. Tender abdomen around hernia at belly button. Fatigue. My cancer was found during the hernia surgery and thank God for that as it was DX PPC 3b after laproscopic peek and then they added Fallopian Tube cancer after surgery. I had no fluid or bloating either.

    I had surgery on Nov 4, 2015. Finished chemo Feb. 29, pelvic pain as yet or any symptoms.

  • Thanks for your reply. Coming up in a year for you!!! 😊😊😊 so happy for you!

  • Hello

    I had my first Acute abdominal pain on holiday, was rushed to A&E, they found I was pregnant, but very early maybe a week or 2 only. I was kept in overnight and had a scan which showed a shadow, which they said was probably a fibroid but that I should get checked when home. Nothing showed on subsequent scans. I was very tired but working, pregnant and looking after a 2yr old that seemed normal! Vaginal delivery. Tiredness didn't go away, but normal, lost loads of weight, back on, abdomen swelling and sharp pain during intercourse and then also during bowel movement really painful. Went to GP for coil and she found it. Sent for scan which showed mass. Abdominal pains really bad, made me puke. First surgery 3months after scan (baby 16months old by this time).

    Baby had shared space with three masses, each the size of oranges by the time they took them out, and one was stuck to lower bowel which took a lot of careful unpicking by fantastic surgeon. That was 2014. Still NED.


  • Wow what an inspiring story... so you were pregnant, delivered the baby vaginally and then later found the tumors? How old was the baby then? So happy to hear your NED πŸ‘πŸΌπŸ‘πŸΌπŸ˜ŠπŸ˜Š

  • Baby was 12 months when the GP sent me for scan. The tumours were probably only small when I delivered him, it didn't show on later scans because he was lying on them! So pleased you are doing so well now too! πŸ’ͺπŸΌβœŒπŸ»πŸ‘

  • Hi. I only had 2 symptoms. The 1st was like a tic (twitch) in my groin, which later became painful (swollen lymph node). Then a bloated belly. Best wishes. Pauline

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