Recurrence symptoms

[ZenaJ]

Good morning ladies.

Just a quick question for anyone that has had a recurrence. Did you have any symptoms and if so, what were they?

I hope everyone is doing well and not feeling too cold.

Best wishes, Zena J x

[Katmal-UK]

Hi Zena, can't help sorry. Had no symptoms at diagnosis and none at both recurrences. If you feel you have symptoms I would contact your hospital? Not the most useful/helpful of replies!Hope you are ok. Kathy xx

[ZenaJ in reply to Katmal-UK]

I'm sure I am (I say confidently). I go for my check up next week so that will confirm I'm fine.

I only have bloating. I didn't really have any symptoms with my original diagnosis but was just wondering if I should expect any.

Thanks for your reply Kathy. Always, nice to have a chat. xx

[Katmal-UK in reply to ZenaJ]

Oh good luck for next week. I have my scan results tomorrow. Even after 10 years I still get in a tizzy lol, though not until I'm actually in the room waiting for the results. I tend to watch the expression on the Dr's face. If he's smiling all will be well, if he walks in looking serious I'm in trouble. I'm ok when I don't have to think about it lol. Soooooo scan results tomorrow and then off to the Vets to pick up my dog's ashes :(. I was dealing with that fine too until they rang to tell me he was ready to be collected :(. xxxx

[Cropcrop in reply to Katmal-UK]

Busy day tomorrow for you Kathy. I hope your scan is OK and that picking up the ashes isn't too difficult. Take lots of care, big hugs and love ❤️Xx Jane

[Katmal-UK in reply to Cropcrop]

Thanks Jane x

[Emsymits in reply to Katmal-UK]

☹️ Good luck for good news tomorrow.

Em

X

[Katmal-UK in reply to Emsymits]

Thanks Em. xx

[ZenaJ in reply to Katmal-UK]

This could be me talking except for the dog. I'm so sorry to hear this. It is very upsetting for you. Wish you all the best. xx

[Hidden in reply to Katmal-UK]

Good luck tomorrow Kathy I'm sure you will let us all know how you go on and I'm sorry to hear about your dog!! its an awful thing losing your best fur friend xx

[Chickysha in reply to Katmal-UK]

Good luck for tomorrow!

To lose your dog is like losing a best friend,but they leave paw prints on your heart forever . XX

[Gleedy in reply to Katmal-UK]

Very best of luck. I hope the doc has the cheesiest of grins xxx

[1032 in reply to Katmal-UK]

it will all be good.

[Jessfrogg in reply to Katmal-UK]

Sorry for the loss of your dog. Our fur babies hold a special place and is always hard when one is lost. Best of luck on your results.

[1032 in reply to ZenaJ]

good luck

[Hidden]

Hi Zena, I have had two recurrence but no symptoms really, both of mine have been more thickening than tumour so not sure if that's why!

hope you are ok xxx

[ZenaJ in reply to Hidden]

Hi Alison, thanks for your reply. I'm only asking so I know what to look out for but it looks like it's the same as the original no symptoms. I'll get the bloating checked out but I'm confident all is okay. xx

[ZenaJ in reply to Hidden]

I'm fine as far as I know Alison. Thanks for your reply. Hope all is okay with you, also. Best wishes, Zena xx

[Avis52]

I am facing my first recurrence and I had no symptoms just a rising Ca125. However on CT and pet scan a bubble /lesion was seen on or around liver. This has now been removed and due to see oncologist later today.

[ZenaJ in reply to Avis52]

Hope all goes well with that.Let me know how you get on. I haven't had a scan for at least 3 years. I only get my CA125 checked. I'm worried what will happen when the 5 years is up. xx

[Avis52 in reply to ZenaJ]

Thank you for your reply. I was first diagnosed just before you in March 2013. Got to have another staging CT and blood test and then due to start chemotherapy at the end of October - oh what fun but anything is worth it to get rid of the monster.

[ZenaJ in reply to Avis52]

Did you have treatment in 2013? It looks like I have more excitement to look forward to, although I live in hope. xx

[Avis52 in reply to ZenaJ]

Yes I had four rounds of carboplatin and paclitaxol, then bilateral salpingo-oophorectomy and omentomectomy and then two more sessions of chemotherapy. I had undergone a hysterectomy in my 40's.

[ZenaJ in reply to Avis52]

Thanks Avis. Good luck with the chemo. x

[ricky23]

I had a lump on my neck and rising ca125..just 4 weeks after finishing my Chemo carboplatin.

[ZenaJ in reply to ricky23]

Sorry to hear this Ricky. If I had a lump in my neck I wouldn't dream it was anything to do with my illness but in saying that I put everything down to it now. I've got to get a grip. xx

[Hidden]

Hi . I've had 3 recurrences and my signs were rising Ca125 and abdominal pain and discomfort. All recurrences in peritoneum

Best wishes

Juliet

[Caleda4]

Hello ZenaJ,

Prior to diagnosis I had colourless discharge & then a small bleed,but was still not picked up by my then GP. I find it very concerning that because I am on watch & wait that there maybe something going on inside that I know nothing about & when I do know maybe it will be to late should there be a recurrence!!

My Consultant did say that I would know if something was different,but I still worry. I have my first 6 monthly appointment with her this Thursday 21st which I am dreading,but will see what she says. I have not been offered a scan or blood test since I finished my chemo in March 2016.

I feel very well at present,but never sure if this is a good sign or not.

Wishing you well,sorry I cannot be of any help at present. xxx

[Petrolhead in reply to Caleda4]

Hi Caleda

Your watch and wait would not be acceptable to me and I told my consultant so. I have insisted on 3 monthly bloods and 6 monthly scans as I did not have any symptoms in the first place. She said to me I might have symptoms if I had a recurrence. Might!- not good enough.

If you feel it is time for a couple of checks then make your views known. If you are doing fine as you are then ok. Make it your decision either way.

Best wishes Fay

[ZenaJ in reply to Caleda4]

Like you, my GP didn't pick anything up. I agree with you it is a worry that something might be happening and we don't know about it. I'm not sure why your consultant thinks you'll know about it if something is different because everyone seems to be saying that there are no symptoms. It's almost a lottery as to whether you have a good consultant or not who might pick up a problem.

I can only wish you the best and we'll just have to keep being positive. xxx

[Caleda4 in reply to ZenaJ]

The Consultant I am with now is the one that picked up on the cancer in the first place & asked to me go to the hospital straight away (this was following the biopsy, so I do trust her. However I might be tempted to ask for a scan prior to the next app. I do agree though all these things are a lottery.xx

[Pauline14]

Hi, I am on my 2nd reoccurrence and both times I knew it was back

As i feel uncomfortable on my left side and my bowels play me up .

But apart from that I was fine .

I have my 2nd chemo tomorrow Carb/ Caelyx ..... so not looking forward

To it as they sometimes find it difficult to find a vain .

Best wishes

Pauline xx

[ZenaJ in reply to Pauline14]

I think our veins wear out. Sometimes they'd try four times and still have problems. Because I used to do paid drug trials I already had bad veins from numerous canulas. Even years later it aches sometimes.

Good luck tomorrow, Pauline. At least (on a lighter note) you should be able to go to the loo after it all.

Best wishes, Zena x

[Chickysha in reply to Pauline14]

Hi Pauline I have my firstCarb/Caelyx on Thursday.I m having a Picc line in tomorrow as my veins are poor too.Good luck with your second. How have you been?

Sharon x

[Pauline14 in reply to Chickysha]

Hi Sharon ,

I was feeling a bit sickly for 2 weeks and had indigestion which didn't help but nothing to bad.

Hope all goes well tomorrow and Thursday

Take care

Pauline x

[Pauline14]

I think they would like me to have a port .... but to be honest I don't fancy

One but I know that it will come to that in the future 😒

Aha!! Yes I hope so , the trouble is the chemo makes me so I

Can't go it takes me a while to get it sorted .... but looking on the bright side

I cope quite well with the chemo I have had , hope it continues

Best wishes to you Zena ,

Pauline x

[Tesla_7US in reply to Pauline14]

Pauline, a port is a serious advantage to you if you need further chemo treatment. You can swim, shower, bathe and get on with your life. No poking you multiple times to find and then ruin your veins. I've had mine for two years now. I forget it's even there. I think providers discourage patients from getting them because the person who accesses it must be specially trained and is paid a higher wage. Money drives myriad health care decisions on the part of providers. This is why they are happy to skip blood work and scans to save a few bucks. When in doubt, follow the money.

[Pauline14 in reply to Tesla_7US]

Thank you for your advise .... I will certainly consider it if

They have problems today finding a vain today .

When I ask my Dr onc she had a look and said well I could find one .But I don't think it would be due to funding as I have work private health insurance and they have been really good .

Pauline x

[Lewisriley47]

Hi Zena, On first recurrence no symptoms but a rising ca125, and on second recurrence bowel problems with astices.I hope all goes well for you, take care Pam x

[ZenaJ in reply to Lewisriley47]

Thanks very much Pam. Best wishes x

[Lynn_B]

Im on second reocurence.I knew all three times with bloating and bowel issues.Rising ca125.Im halfway through treatment.Im still bloating,so nervous treatment is not wiorking.Having scan today...

Best wishes Lynn.💙💙

[ZenaJ in reply to Lynn_B]

Oh dear, best wishes Lynn we're all thinking of you. I've got a lot of bloating so am a bit concerned. I'm telling myself it's natural weight gain but I guess I'll find out next week when I go for my check up.

Good luck with the treatment. Let us know how you get on. xxx

[Chickysha]

Hi Zena, symptoms were bloating and general uncomfortable bowels.Discomfort now painful.Chemo starts again tomorrow to shrink the buggers. Best wishes to you.Sharon x

[ZenaJ]

Thanks Sharon, best wishes to you also. You should be finished for Christmas. xx

[Hidden]

Hi ZenaJ, I recurred in Sept 2016 and at that time was feeling great (devastated at confirmation of recurrence), after about 3 months on "watch and wait" I started to have mild bowel symptoms but otherwise really fit and well, these gradually got worse until I decided I was ready for second line chemo (which I've just finished). The bowel symptoms disappeared within about 3 weeks of starting chemo.

Not feeling cold here in Australia - it's warming up nicely, although with a bush fire on the farm boundary we would do with some rain.

Best wishes Dawn

[ZenaJ in reply to Hidden]

Thanks Dawn, it seems like the bowel is a common factor.

Hope you're not too troubled by the fire and got lots of buckets. It's a beautiful day here in Essex, England. No rain and lots of sunshine. First official day of autumn so expect some cold nights and mornings. We hope to get to Australia some day. It's the spiders that put me off.

Hope all is well with you now. Zena x