Trying to keep positive

[Juliette35]

Seeing my oncologist this Friday about my scan results. I finished chemo on the 16th of December, but recently I have been getting a few stabbing pains in my stomach. They don't last long but come and go, I am frightened it is coming back. Has anyone else experienced this after finishing chemo. Thanks, Julie xx

[ScardyCat40]

I think we have all been here. Try and distract yourself if you can

[Juliette35 in reply to ScardyCat40]

Thanks cat. Will get back to reading my book, that does keep my mind off things. 👍

[Mrs_Atko]

Hi Julie - I can't offer any advice specifically as I've not had to have chemo, but I can certainly sympathise with worrying over pains! I think most of us on here would agree that once you've had a diagnosis, any niggle or pain will immediately make us worry for the worst, so rest at ease that that is a very normal feeling to have. I wish you all the best for your scan results on Friday hun and hopefully that will put your mind at east that it's nothing to worry about. Thinking of you. Jemima xx

[Juliette35 in reply to Mrs_Atko]

Thanks jemima, and good luck with your scan result in February. Will be thinking of you. Julie xx

[Mrs_Atko in reply to Juliette35]

Thanks Hun, appreciate that xx

[Yoshbosh]

Yeah... this was me a few months ago. Waiting for the scan results and had some nasty pains - I thought it was OC and my GP thought it was appendicitis. Turns out it was neither - told NED by the oncologist and I still have my appendix.

Try not to worry about it (easier said than done!!).

[Juliette35 in reply to Yoshbosh]

Oh that's brilliant news, so happy for you. Hoping mine will be the same, so far I have had good results. 😃

Xx

[Yoshbosh in reply to Juliette35]

I'll be keeping my fingers crossed for you. I had a good response all the way through too xxx

[Lyndy]

Hi Julie

For a long time after chemo I used to get muscle pain ( although that wasn't clear at the time) right around my abdo but particularly pain that felt as if it was under my ribs. It turned out to be nothing at all and has largely disappeared.

Hope yours is similar and turns out to be one of those passing things following chemo! xx Lyndall

[Juliette35 in reply to Lyndy]

Thanks lindall. That's what I am hoping too. Xx

[Katmal-UK]

Hi, in a word yes. I still get the odd stabbing pain now and even though I know im ok the first thought is 'its back' and as my hubby says as soon as my dr says im ok the pains stop! I hope Friday goes well, please let us know. Sending you a big hug xx Kathy xx

[Juliette35 in reply to Katmal-UK]

Thanks Kathy, you have made me feel so much better. Knowing that other people have it as well. Sending you big hugs also. Love Julie xxx

[Hidden]

Hi Juliette, yes you can have that in the area where the cancer was for some reason, my oncologist said it was normal, These days it is almost non existent

[Juliette35 in reply to Hidden]

Thanks suzuki, sending you all my best wishes. Love Julie xx

[dmr24]

Yes I get odd pains and I finished chemo in November. I was NED earlier this month. I asked my oncologist what I should be concerned about in the future. She told me I was allowed to be unwell but if anything lasted for more than a week or 10 days to get in touch with my CNS and they would check me. It's reassuring to know that once they have hold of us they don't let go completely. Try not to panic, if you need reassurance ring your CNS.

Try to relax- easy said!🙃

D

X

[Juliette35 in reply to dmr24]

That's good news for you d and thanks for your reply. Xxx

[marold52]

I know exactly how your feeling, I finished chemo in June 2016, I landed up having 2 UTI's. which made me feel quite poorly, then I got a niggle where the cancer was, convinced myself it was coming back. I went to my gp the week before christmas in tears I felt so down, she did every test she could possibly do, nothing wrong but decided dizepam 2mg was best way forward for awhile, it's been my answer to the pain the worry had just got me down, I feel really soo much better doing normal stuff now, good luck. Marg x

[Juliette35 in reply to marold52]

Aaaw thanks marg, so glad the dizepam has helped you . My doctor prescribed me amytriptalene, which help. Xxx

[Tesla_7US]

Yes, I had those too. I think chemo irritates the lining of all soft tissues. The pains went away. So did the nose bleeds, the sore throat, the dry as the desert eyes, the irritated bum. All of that went away, all that remains for me after 5.5 months is a tiny bit of foot neuropathy and chemo brain memory issues.

[Juliette35 in reply to Tesla_7US]

Oh gosh yes the chemo brain, my memory is so bad now I forget thing's so easily. And my finger nails and toenails are bad . But got antibiotic cream for them . X

[IrishMollyO]

Hi Julie

Worrying about niggly pains becomes part of most of our lives. It can really get you down and I have been there , bought the tShirt so many times. I find getting good news about a scan can lift the pain along with the spirits . I hope this happens for you on Friday so will be keeping my fingers crossed for you . Take care and I wish you the best of news on Fri.

XXX

[Juliette35 in reply to IrishMollyO]

Thank-you molly I really appreciate that. Like my hubby said I only finished chemo a month ago and I was having it every week for eighteen week's so it's bound to irritate my insides so to speak. 😏xxx

[triplets]

Its nice to feel you are not alone, I am currently sat up in bed with a hot water bottle on my tummy as its felt irritated and sore all day.........keep feeling for swelling etc! Awaiting my 6th chemo on the 24th, ct on the 6th Feb.........but as you say every niggle worries you.........not surprising is it? I am sure all will be well, good luck on Frid! x

[Juliette35 in reply to triplets]

Thank-you, and wishing you well with the rest of your chemo and ct scan

Xxx

[CallmeMum]

Hi Lovely,

From an outsiders point of view it's quite normal to feel like this. Scan results always feel like a waiting game, the same as it is for those on watch and wait, it plays on everyone's mind is a little niggle the C word come back with avengence? As I say to my special person if its come back we're back on the chemo train. You have to remember they're finding new treatments everyday and there is always hope as long as you believe. Mind over matter easier said than done but it helps a lot. I hope you have a strong support network who can help you through this and we're always here someone will always listen xxx

[Juliette35 in reply to CallmeMum]

Thank-you, I really appreciate all the reply 's I have had off all you lovely ladies.Thankyou so much. Xxx

[Steghart]

I have had pain under my right rib for ages and got really bad last week. Had 3 month check up with surgeon yesterday, it's my gallbladder! As she said the trouble is we all tend to assume that everything is related to cancer now & forget that other things can be a problem too!! It's so hard, after 5 years I still freak out every time. Good luck xxx

[Juliette35 in reply to Steghart]

Thanks, yes when I get these stinging pains I think the worst. Is that five years ned,? Xx

[Steghart in reply to Juliette35]

I was diagnosed in 2012 and have had one recurrence at the end of 2015 so not doing badly all things considered xx

[ellseybellsey]

Julliette

I think we all go through this and what was once frequently ignored by us now makes us so frightened it has returned, I am now four months on and every time I get a niggle I start worrying. I have started doing different things in my life to keep my mind off it.

Hugs Ellsey xx

[Juliette35 in reply to ellseybellsey]

Thanks ellsie, and that is what I am going to do. My daughter in law crochet's so am thinking of giving it a go. Also I love having my two youngest grandchildren, they definitely take my mind off things. Sending you big hugs too. Love Julie xxx

[Hidden]

Yes most definitely, finished chemo Nov 4th and have had all kinds of funny twinges and pains. My view is that the steroids I was taking each chemo masked a lot of aches and pains.

We have all been through a lot, hardly surprising we are feeling a few twinges.

I have been convinced it's not gone or come back at least once a day! 😜

Lisa x

[Juliette35 in reply to Hidden]

Thanks Lisa, you are right and thinking about it I wasn't having pains when I was on the chemo (and steroids) . 😏xx

[Nancybib]

Hi. Yes, we all visit that in our minds. My GYNONC told me you will become very aware of your body noticing more than you ever have in the past. Keep in mind that your mind is your most powerful tool and if you let it control you in a negative manner it will. They to focus on what makes you happy, focus on what you can do to keep busy but most of all keep the faith stay strong and remain positive. Control your mind don't let it control you. Try meditation that works I recently have been doing it myself. Best wishes and please let us know how you do love Nancy

[Juliette35 in reply to Nancybib]

Hi Nancy thanks for your encouraging reply, and just got to say what a lovely photo. I read your profile and it was so upbeat. When I was on chemo I did suffer quite a lot with fatigue but it's now a month since my last chemo and feeling more or less back to normal. Also I am going to get back doing a bit of yoga stretches, I have a few yoga dvd's. Also I have my faith ,. I will try meditation as well.

Love Julie xx

[caf132]

Hi Julie-

What you are experiencing is normal-I finished my chemo in October 2016 and had my CT scan in November. Boy did I think every little twinge was a new tumor coming back and I was full of anxiety. Little pains that a year ago I would not give and thought about got my imagination working overtime. Try to stay busy, get a massage or go in a hot tub to take your mind off the unknown. We have all been in your shoes or will be. Keep thinking positive thought and stay in touch. Sending support and love.

XxCarol

[Juliette35 in reply to caf132]

Thank-you carol, I finished my chemo in December and had scan beginning of January so will find out results this Friday. Will think about booking myself a massage. Sending you my best wishes and hugs. Love Julie xxx

[Caroles1]

I get an aching sometimes in my pelvic area,the location of my tumour and tugging in the area of my scar,but, I had my scan in October and am NED,so, I think we all have this, try not to worry,so many of us have said the same,so chances you will be fine,

Carole xxx

[Juliette35 in reply to Caroles1]

So glad you got posative results carole, I can't thank you and the rest of the ladies enough. So many good posative comments. Thanks to everyone. Julie xxx

[thesilent1]

Yes, and after careful observation I've noticed that it happens when my bowel is slow if you know what I mean. Once I've gone, the pain seems to have gone too! Good luck. Ann xx

[Caroles1 in reply to thesilent1]

Me too!!

Cxxx

[Tracex]

Hi im also waiting for my scan results after finishing chemo november after a reccurrance.. my appointment is on 25th jan... not looking forward to it be a bag of nerves on the morning.. ive bein avin alot of acheing in my body since chemo ended more than i had after 1st line treatment.. so i also worry... all the best sending u hugs xxx

[Juliette35 in reply to Tracex]

We are both the same , your results five days after mine. Will be thinking about you. Sending big hugs. Love Julie, this is my second occurance too.😕xxx

[Julie40]

Julie I've had that a few times and thankfully it turned out to be scar adhesions causing problems. It was very painful at times and also frightening as the dreaded return of the unwelcome visitor is always at the back of your mind.

I think if the pain is regular and constant then you definitely need checked.

I have had a recurrence and did know it was back before my scan. I could tell the difference and the pain wasn't intermittent it pretty much stayed all the time even though it was just a niggle.

I would say if it is starting to worry you get it checked and give yourself peace of mind. There's no point in worrying unnecessarily as it's tough enough at times living with this. Good luck for your appointment on Friday xo

[Juliette35 in reply to Julie40]

Thanks Julie, I will find out tomorrow what my results are. the pains I get are not there all the time, just come and go. So taking your advice and not worry about things. Big hugs xxx

[Juliette35]

Hi, not been on here for a few weeks but thought I would let you know my scan results came back ned. Was so relieved, I will next see my oncologist near the end of March. Just want my feet and ankles to go down also swelling on my right leg, my onc said if I get any pain in the leg to get it checked out as it could be blood clot. Not got Any pain but thinking of getting it checked today being it's over two weeks since I saw oncologist and it's still swollen. Xx

.

[Sunfleury-UK in reply to Juliette35]

That's great news Juliette, NED is a fabulous result! do hope that you have some relief and improvements in your leg very soon. Good idea to get the swelling checked out... Best wishes, Sx

[Juliette35 in reply to Sunfleury-UK]

Hi s, thank-you I was dreading the result. I had visit off district nurse this morning so showed her my leg, she got me emergency appointment with my gp so seeing her half four today. Hopefully put my mind at rest. Take care Julie xx