The Ovarian Cancer Patient Survey 2016


Dear MyOvacome Member,

In 2006 we conducted the largest survey of women’s experience with ovarian cancer in the UK. The survey was published and presented to the International Gynae Oncology Society. To mark our 20th anniversary and almost exactly 10 years later, we are repeating the survey to learn about current practices and study how things have changed.

The survey is all about finding out what happens to women in the UK with ovarian cancer when they first visit a healthcare professional. How quickly are they given a proper diagnosis? What choices are they given about treatments and services? What are their priorities? What works well? What needs attention? As with our last survey, we will be using the findings when we talk with the government and whilst making representations to NICE, ensuring that the ovarian cancer communities experience really does matter.

The survey has been tested by Ovacome volunteers, and on average takes less than 25 minutes to complete.

No personal details or names will be published or disclosed – only statistics and these are vital. Click on the link below to access the survey and we would be most grateful if you could complete it by Friday 13th January 2017.

Please click here to complete The Ovarian Cancer Patient Survey 2016:

The information and work Ovacome produces fulfils the criteria for the Information Standard and the same goes for this survey. Results will be shared with the clinical community and at our members day on 4 March 2017.

The project has been supported by an educational grant from Merck Sharp & Dohme (MSD) Ltd.

If you have any queries, concerns or comments about the survey, please do not hesitate to contact us. We look forward to receiving your completed information and thank you for participating.

Thank you so much. Your help is really important to us.

Louise Bayne,

Ovacome CEO

Last edited by

5 Replies

  • Just completed it.

    HOWEVER note for any future surveys there is a question which says have you had a recurrence with a YES or NO answer. You need to have an option for UNDERGOING TESTS NOW.

    Thank you

  • Dear Choski

    Thank you for taking the time to complete the survey and your feedback regarding the options regarding recurrence. We have now updated the survey to include an option for undergoing tests.

    Best wishes


    Support Services Manager

  • Thanks Anna, that's great xx

  • Can't help but think it's a shame this has been commissioned so near to the release of TOCs Pathfinder Study... There's a lot of information in that and suspect a great deal of findings will be duplicated....

  • Done.

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