Just over two years in to this journey I've been reviewing the sources of support I have and I've started a list thinking it might be a helpful resource to others. With so many organisations working to help us we can find ourselves in an information maze.
In some cases it's necessary to register as a member to access resources. It's worth considering which organisations you've joined and whether the contact details held by these organisations are up-to-date. If you've changed your address, mobile or email address it's worth letting them know so they can remain in touch. Here are a few. I hope others will add to this blog of useful resources.
This is the charity that moderates this Health Unlocked site which I consider to be my biggest source of support from women who are living with Ovarian Cancer.
There's a great nurse-led support services available 5 days a week: 0845 371 0554 or email: firstname.lastname@example.org
There's a basic list of clinical trials in the Section 'About Ovarian Cancer'
At the bottom of the home page you can join Ovacome to receive newsletters via email or post and you will be able to attend Members' Day
Target Ovarian Cancer
This charity is prominent in all the regions of the UK with its Regional Get-Together Days.
The charity has been particularly active in a quest to achieve parity of treatment/awareness-raising in the devolved administrations. A new officer has recently been appointed in Manchester
There's an excellent Clinical Trials list giving eligibility criteria which you can search by postcode but it's difficult to find. I always use the Site Map at the bottom of the Home Page. Clinical Trials are listed under 'I have Ovarian Cancer', 'I've just been diagnosed'.
You need to Register with this charity to receive their online or paper newsletter. To do this click on 'Contact Us' at the top of the site and you can register your details here.
This charity has similar aims as the previous two but it also boasts a Research Centre at the Hammersmith Hospital in London and you can arrange a tour of their facilities with a lecture by Professor Hani Gabra. To do this contact Abi Ajose-Adeogun at Abi@ovarian.org.uk to find out when these are available.
To sign up click on the beige box at the top of the home screen, 'Sign Up'
On Facebook there's an active group called Ovarian Cancer UK and another called The Ovarian Cancer Network (OvCa.net)
Memorial Sloan-Kettering Cancer Centre
This is a helpful site which lists Herbs, Botanicals and other products by A - Z, etc. and will give you the low-down on their properties, uses, side-effects, etc. It's great if you hear of a new supplement for cancer and want to check it out. It's a world-leading centre of integrated medicine based on research.
Probably the best-known of all the cancer charities.
WebMD (in collaboration with Boots the Chemist in the UK)
Another helpful resource for symptoms, disease progression, news, etc.
A site of blogs and information for women with ovarian cancer and their supporters.
I hope others can add to this list so we can share the services and support we've found most helpful. Please add other useful links and aspects of support services you have found particulalry beneficial. It would be such a helpful resource.