Ovacome Survey

[TheOvacomeTeam]

Dear All

Ovacome have put together a survey asking women about their experiences of ovarian cancer symptoms and whether they initially associated these with the menopause. The survey will be up to a maximum 8 questions long, depending on your answers, and will take only a few moments to complete.

The results will inform our awareness raising campaign during Ovarian Cancer Awareness Month, which takes place every March and is an important opportunity to raise the public profile of the disease. If you can spare a minute of your time to share your experience it will help us to focus our awareness raising where it is most needed for Ovarian Cancer Awareness Month 2019 and beyond.

surveymonkey.co.uk/r/HV65256

Many thanks

The Ovacome Team

[Katmal-UK]

Hi I wanted to complete this but realised it's asking about symptoms. I never had ANY symptoms. Despite two recurrences I have never had any symptoms. Maybe I'm an exception to the norm. xx

[OvacomeSupport Partner My Ovacome Team in reply to Katmal-UK]

Hello Katmal-UK

Thank you for offering to complete the survey although it turned out not to be relevant for your experience. The aim of the survey is to gain further insight about one aspect of ovarian cancer, which is the symptoms being associated with the menopause. As you say, this absolutely isn't the case for everyone. When we promote the results of the survey we’ll be certain to make it clear that this isn’t every woman’s experience.

Best wishes

Anna

Ovacome Support Service Manager

[Katmal-UK in reply to OvacomeSupport]

Thanks Anna

[Shortie38]

Hi was the same,it was through c.t.scan for a hernia,no symptons,i was 77yr then,x

[OvacomeSupport Partner My Ovacome Team in reply to Shortie38]

Hello Shortie38

Thank you for your comment to share your experience. As I mention in my reply to Katmal-UK above, the survey is a small one to look at one aspect of ovarian cancer - the symptoms being associated with the menopause. Although this will help us with our awareness raising, we'll be absolutely clear that not everyone experiences symptoms.

Best wishes

Anna

Ovacome Support Service Manager

[grammeejill in reply to Shortie38]

Same here, Shortie. I went in for a routine hernia operation... Come out with stage 3b. Insane. No symptoms.

[Hidden]

all done

[OvacomeSupport Partner My Ovacome Team in reply to Hidden]

Thank you lyn1987.

Best wishes

Anna

Ovacome Support Services Manager

[Artgreen]

Done, but I thought it was also not just post-menopausal but IBS.

[OvacomeSupport Partner My Ovacome Team in reply to Artgreen]

Thank you Artgreen. You're certainly not alone in thinking that, ovarian cancer symptoms are often thought to be IBS. As part of our awareness raising we let people know that IBS usually starts between the ages of 20-30 so if you experience symptoms later than that age, it's unlikely to be IBS.

Thank you for sharing your experience.

Best wishes

Anna

Ovacome Support Service Manager

[Hidden]

Happy to share experience in hopes that it helps someone else get diagnosed and treated when in early stages.

[OvacomeSupport Partner My Ovacome Team in reply to Hidden]

Thank you Almalyffe.

Best wishes

Anna

Ovacome Support Services Manager

[MostlyHarmless]

Done. Incidentally, I answered yes to the had I heard of ovarian cancer before diagnosis but I only became aware of it a week before diagnosis (leaflets distributed in the loos at my workplace). I had just enough time to think 'Ooooh, that sounds like me, I must try and see my GP' before ending up in A&E.

[OvacomeSupport Partner My Ovacome Team in reply to MostlyHarmless]

Dear MostlyHarmless

Thank you very much for taking the time to complete the survey, we really appreciate it.

Best wishes

Anna

[IrishMollyO]

Hi Anna

Is this survey for the UK only ? If it's worldwide I will fill it in over the weekend. Regards

X X

💚💕

[OvacomeSupport Partner My Ovacome Team in reply to IrishMollyO]

Hello IrishMollyO

The survey is for everyone, we would welcome your feedback.

Best wishes

Anna

[BJ_UK]

Done. I was diagnosed with ovarian cancer at age 58, having been told at age 54 that I had IBS following investigations for possible colon cancer. Nobody thought to look for ovarian cancer at the time!

[OvacomeSupport Partner My Ovacome Team in reply to BJ_UK]

Dear BJ_UK

Thank you very much for taking the time to let us know about your experience.

Best wishes

Anna