I have just come back from hospital and the doctors say my wife's kidneys are not processing water properly and so all fluids are draining into her tissues and making her bloated and almost cant move with pain. They say they have tried everything and it is a wait and see game now.
My wife had a full debulking surgery for her OCS disease 5 weeks ago. She was released a week later and once she had her catheter removed a week after that, then she started to contract infection. After a strong course of antibiotics, she started to have malnutrition (in hospital), and dehydration, so they gave her IV drip and started to pump special nutrition feed via a nasal gastric tube. This was 2 days ago. This was all to get her strong again for the start of the chemo. There are signs that her disease is coming back in her abdomen and every time she clears one hurdle another even harder one appears and it feels like every time sit feels like she has turned a corner, it goes into another dark tunnel.
Now they are saying that the blood indicates that her kidneys are not working well and that is why most fluid seems to be draining into her tissues. She is now bed bound and she was an active 53 year old before all this. They said her weakness and malnutrition and disease are all part of this and they cannot do anything more, just wait and see. This has caused a great deal of stress for me. My wife tells me not to worry that all she needs is rest and it will be ok, but she is being braver than I.
I have asked them to consult a renal specialist, but, this being the NHS, advice can be fragmented or even worse, wrong.
I really dont know what to do? It is almost like the doctors are saying: "sorry that's all we can do for her, now its up to her body"..