I thought to let you know that my wife, who had OCS and had the op 4 weeks ago was readmitted into hospital with an infection. The doctors say that they cannot start the chem until the infection is gone (carboplatin and paclitaxol for 6 sessions). However, my wife has also developed a blood clot (which is why there is infection) as a result of the anti-clotting injections she needs to still take 5 weeks after the op.
A CT was done a few days ago which showed that she has developed nodules on her colon. I am afraid that the cancer is back before the chem has even started within 4 weeks of the debulking surgery she underwent.
I am scared that she will go in this vicious cycle of infection/lack of strength because of low appetite and the chem will be delayed further while the disease comes back.
Does anyone have any advice? has anyone had the same experuience?
It sounds like this OCS is a very aggressive disease that just keeps growing.
I still keeping taking home cooked food for her to eat to gain her strength but every step my wife takes forward, it is followed by 2 steps back again and I feel she is suffering as a consequence of doctors medicines and just not going forward.
I would really appreciate any comments on your experience and any advice you can offer, as I feel I am completely helpless and cant do anything.