Hi Everyone, I really need some advice. My mum is stage IV and tomorrow is her last chemo ( of 6 with interval de bulking) We have been told that she most probably will be in remission after her last chemo although we won't know this for definite until the scan a few weeks from now.
My question is, how do all you ladies on here monitor for a recurrence? Do you have Ca125 tests - if so how often? And do you have regular scans as well? The reason I ask is that Mum's oncologist ( we are in the uk ) has told us that they will do neither of these as there was a big trial that showed it was of no benefit to check ca125 levels in patients as it meant that ladies were being given chemo sooner than needed and it doesn't improve long term survival. Mum has been told that she should "listen to her body" and that they would only treat a recurrence if she has active symptoms. This worries me greatly as mum had no symptoms at all with her oc - she only had a swollen tummy and by that time it had spread! Could this not happen again with a recurrence? I don't like the sound of doing no tests at all- it puts a lot of pressure on my mum and I think it will make her paranoid. Please give me some advice - what should we do?