I know it seems needy but I feel sad not to have had any replies to my first post. It's probably because I didn't phrase it right or make it clear that I just wanted to feel less alone and to hear from one of you who have had to go through so much already and are so amazingly strong.
I feel in limbo just waiting to have my clinic appointment so they can tell me what will happen. It's a 6cm mass and enlarged lymph glands and lots of fluid and perineal disease and I just feel alone. I have to act "normal" for my son with Aspergers doing his GCSEs (will tell him when these are over in 10 days).
Please can anyone just let me know you have read this? Sorry again to bother you all.