Have any of you lovely ladies had carboplatin 6 months after firstline? I had upper abdo pain which I get occasionally as have gallstones. This resulted in them doing a CA125 5 months after last chemo and Clear CT scan. Now they don't won't to give me anymore carbo which worked well for me first time cleared my very bad ascites in a few weeks and made me feel well throughout rest of treatment. My point is if I had waited for gallstone episode to ease off which it does within 6 hours they would not have tested my CA125 and I would have exceeded the 6 months criteria they use to define platinum resistance and technically they would now let me have carbo & gem which gives me a better chance than single agent chemo which they say is only 20 percent chance it will give me a result.
My rationale is I am an individual and they cannot possibly know for sure the bog standard response applies across the board and surely I am worth another course of carbo which they can stop if my CA125 continues to rise and then conclude I am non responsive and switch me to single agent or if applicable a trial. They are far too generic with their one size fits all whilst try and pull the plug on a drug they assume has not worked in my case but would be ticking the box marked chemo sensitive if I had not been proactive about what I know was gallstone pain, also scan at 5 months was clear also
Good news on Carboplatin and Caelyx
Gemcitabine and Carboplatin tomorrow
Will the carboplatin be helpful to me
Hello. I'm speaking from experience here. My Ca125 went up to 1050 after 11 months and I panicked and wanted to get back on chemo asap. Sometimes it's better to spread treatments out as they are more effective the longer the gap between chemos. I'm on 3rd line now and my Ca125 had gone up to 18040 and they still couldn't see anything big on the scan.It's now gone down to 5718 after 2 treatments so hopefully will continue to go down. I know it's hard but please don't panic too much. Lovis xx