Don't know why I never asked advice from you lovely ladies before. I am sure someone out there has an answer or can give me some advice.
I have a permanent colostomy following debulking surgery in November 2012. Never knew I was going to have one so it was a bit of a shock.
I must admit I have never accepted it and hate it with every bone in my body. I don't irrigate although this is something I would like to do.
Since June I have been getting very bad pains in the stoma. The stoma becomes raised and the surrounding area very large and a ring of solid mass around the stoma. There is no pattern to when it happens and the pain is immediate, no build up! The pains last around 3 to 4 hours, but on three occasions they did not resolve and I ended up in A&E.
One surgeon said its a parastomal hernia and the other said it isn't. I have chosen not to have corrective surgery as it appears that a hernia can happen again. I have started to do exercises to build up my stomach muscles and am being fitted for a hernia belt.
Any advice on the hernia and/or irrigation would be most welcome. Many thanks, Irene xxx