Has anyone got any thoughts please xx - My Ovacome

My Ovacome

17,716 members19,966 posts

Has anyone got any thoughts please xx

nessie1965 profile image
7 Replies

Hi all, many thanks for all your replys it is helpful to know others have been in a similar situation. Have visited my GP who has referred me for urgent ultrasound due to the bloating of the abdomen again and the fact that i am getting pain on and off in both areas of the kidneys. Also received a further letter from recent surgery check up and one line of which concerns me and it is "needs to have metastatic disease from her primary colorectal carcinoma excluded" was not aware i had a colorectal carcinoma!!! any thoughts anyone, thanks Nessie

Written by
nessie1965 profile image
nessie1965
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Whippit profile image
Whippit

Ring the GP immediately. That's not the way to share news. Please do explain to the receptionist what has happened and ask for an appointment today so you can be given an explanation and reassurance.

Please let us know how you get on. xx Annie

Annie is right - that is appalling. I would insist upon speaking to the sender of the letter, or a colleague, if they are not at work today.

Hope you are reassured v soon.

Isadora.

Lily-Anne profile image
Lily-Anne

I would ask for an emergency appointment, it's unfair to expect you to worry, or ring your consultants secretary.

LA

Um, I have heard of a case where colon cancer was mistakenly diagnosed as mucinous ovarian cancer. Apparently there is a colon cancer that typically metastasizes to the ovaries and is sometimes mistaken for ovarian cancer. Sometimes the original bowel tumour can be missed. This is rare but I thought it was worth mentioning. It might be worth asking some questions. Hope you get the answers you need. Cx

charlie12 profile image
charlie12

Hi there

It is true that mucinous OVCA ( which I also had ) can actually be a secondary from the gut. I would suspect though that whoever wrote the letter has got the wrong end of the stick and may not have read your notes properly.

I hope you get answers soon.

Charlie xxx

Madz profile image
Madz

I agree with Charlie but best to double check withe the practice and the letter writer to be sure and prevent further misunderstandings xxx

nessie1965 profile image
nessie1965

Hi all, many thanks for your replies, Just to keep you up to date have received an appointment for the ultrasound which is on friday, so fingers crossed xx nessie

You may also like...

Has anyone thought of stopping chemo

physical health? Has anyone found a way forward from being this low.

Cisplatin and gemcitabine side effects- any thoughts please?

effects have been awful. Nausea and the headache from hell so I didn't want to move. Ondansetron...

Mum has stage 3 Mucinous OC any advice please?

Vernon are offering to start carbo/taxol weekly from Wednesday, but say there are currently no...

Any thoughts?

Jan 2012 HGSOC stage 3C. I’ve had a lot of chemo lines and two surgeries but had very good quality...

Not a very good outpatients appointment. Your thoughts please!

boost my neutrophils as I knew of others who had received it in similar circumstances, one of whom...