Hi, looking for some help and advice!
For the past 15 months, I have had a dull pain on my left side along with a persistent backache (usually at night and on waking). My GP has been pretty good and we started with a colonoscopy which showed evidence of diverticultis.
Pain didn't subside despite meds and diet so did blood tests. This is where I started to get panicky as CA-125 came back elevated at 58 so straight to hospital and ultrasounds, both internal and external - nothing showed up.
Repeat of CA-125 and it was 48, still outside the "norm" so referred to gynae . He did another u/s, more detailed and again, nothing untoward.
Referred to gastro, consutant understaood my anxiety and she sent me for a full CT scan on all internal organs. results came back all clear, nothing wrong!
Final tests as back pain still ongoing was a x-ray of pelvis/hip area, again all clear!!
So, after 3 x u/s, 1 x CT scan and an x-ray, all of which have come back clear, I guess I should assume my CA-125 baseline is just higher than normal.
I still have pains but am trying not to be anxious about it. Dr seems to think that I have two things going on, the diverticultis and back spasm; next stop is physio for the back to see if that helps.
However, my mother has just been diagnosed with a small "tumour" in her ovary, very early days as no referral yet to hospital, just results of an u/s (I'm not sure how her GP can say exactly what it is to be honest without further tests) . She gets very confused about things these days so I will go with her to her appointments from now on.
All that has raised my anxiety levels again about me!! My GP and consultants don't want to keep repeating CA-125 as they say it does more harm than good! I keep telling myself that after all those invasive "looks" at my bits & pieces, if there was something, it would have been noticed!
Any reassurance for me please would be wonderful!
Also, what questions should I make sure I ask with my mother?
Thanks you very much and sending my best wishes to you all as you travel this road x