I haven't written on here for a few months but,I have checked in now and then.Had a difficult few months.Had burst water pipe in house which ruined kitchen,sitting room ,hall and corridor so, we had to seek accommodation and stay away from home for over two months.I missed my home so much and eventually had to fire the builders so we could get back in Christmas week.
I thought due to stress my cancer cells would be on over drive and blood count down but surprisingly my CA 125 is the best it's ever been 10.2014 I was diagnosed advanced stage four ,CA125 2000!!! Estimated time of departure to the world beyond 3 months!! And yet I'm still here,into my 6th year.
When I was diagnosed Avastin was THE maintenance drug.Due to research many more maintenance drugs have been licensed,especially Parp inhibitors.Ive been on Parp (Olaparib ) since Jan 2016. I've gone from being inoperable on diagnosis to having 2 surgeries in the past two years.The latest one was July.A tumour near my left hip pressing on a nerve(pretty painful). It seems some tumours are coming back to their original site but they can be managed.I guess management and maintenance are by words when it comes to Ovarian Cancer.
I'm one of the lucky ones,as my CA 125 has always been my indicator that something is flaring up.I have lost faith with CT scans as ,for me they have rarely picked up anything yet,PET scan has always had results.I have so much care from a Palliative care team that,between Oncologist,gyneoncologist and Hospice,they have kept me going and alive for this long.The Hospice steps in for pain control and holistic therapy.Ive learned it's not a place to go to die but,a place to go to live with an acceptable quality of life both for me and my family,because as we all know our family and friends are also anointed with the bigC .
I'm doing O.K .and at the end of the day ,I think once each one of us can say ,"I'm doing o.k"we're enabling ourselves to normalise in society.
Thinking of all of you.xxx Annie H