Well it is three weeks since my first combination of caelyx/carbo and not sure which I hate the most ..this or taxol. It's hard to put it into words but taxol was painful..really painful but I came round from it within two weeks. This one I am still soooo tired and can hardly walk 100 yards without being shattered..Being a mover this is driving me crazy. Also my dvt leg keeps swelling very badly and I feel like I am dragging a third leg around because it feels so heavy.
The reason I was put on the regime was not tumours ..for me I had a small amount of fluid in my pelvis and a small amount around the membrane round my liver (whatever that means). Then I suddenly developed ascites (again) and had to be drained. The nightmare of the non hospital bed and waiting so long for drain will be etched in my mind forever (not a good experience as usually my hospital is good). I am finding it hard to understand really what is going on and what is happening in my body so am going to ask again on Friday when I have my bloods....yes another dose a week on Monday...sooo not looking forward to it.
Plus side, I have booked my wedding in May and trying to focus on that. Good luck to all of you going through the same..the mind games this horrible disease does can send anyone over the edge.