Just diagnosed with Osteoporosis, rock and a hard place...

[Candygirl31]

Do any of you have multiple conditions that make it difficult to treat OP? I have stage 3b chronic kidney disease, which means I have to limit my calcium and my protein. I also have chronic deep vein thrombosis for which I am on lifetime blood thinners. That means no food high in vitamin K. I'm also disabled in my right leg and hip due to a non-union fracture of my femur from a near fatal car accident(it's 1/2" shorter than the left). I also have moderate osteoarthritis in both knees and shoulders. So, I'm a 51 year old mess, lol. I don't want to take the medicine, Fosamax, that my doctor prescribed. Suggestions?

[Merryroundabout]

I’ve got a fairly recent diagnosis of Osteoporosis too, and found I can’t tolerate the oral bisphosphonates so I’m waiting for the next option. My mother took Risedronate for years and after I persuaded her to get her side effects c investigated was found to have gastric ulcers. She also has CKD, and she now has 6-monthly injections of Denosumab/Prolia for osteoporosis . The CKD means she can’t have Zoledronic Acid infusions. There’s another treatment, Teriparatide/Forsteo but it’s less often used. We’re in the U.K. and the last three options have to be prescribed by a consultant.

[Candygirl31 in reply to Merryroundabout]

Thanks for your reply. I understand about the stomach fears. I have already had stomach acid issues for a long time. I can't see me tolerating the oral tablets. It also scares me to take anything that could effect me for 6 months 😳. I hope your mom's stomach is healed. That sounds so painful 😢

[Fruitandnutcase]

Gosh, you certainly have a lot to contend with for someone so young. I don’t know if it is any help to you but I have a friend who is on lifeling blood thinners. Up until recently she was taking warfarin which affected what she was able to eat. She has bern changed onto a more modern drug and as far as I know she can now can eat what she likes. I found this link for you in case it helps

pennmedicine.org/updates/bl...

Be careful if you are thinking about Denusomab/Orolia because if you have to stop it at any time or are even late in getting your treatment it can lead to rebound fractures. You’ve got to be able to transfer to a relay treatment which as far as I know is usually a bisphosphonate. So you need to know you can tolerate bisphosphonates.

[Candygirl31 in reply to Fruitandnutcase]

Thanks for your reply. I'm actually on medications for bipolar 2 disorder that are contraindicated to the newer blood thinners. I don't want to change them because it took a while to get the right combination and I have been on them for about 8 years or so now and they are still working well. My PCP continues to ask me every time I see him why I'm on lifelong blood thinners 🙄 I've been his patient for at least 5 years now and apparently even being a 51yo on a walker doesn't make me memorable LOL! I just keep going to him because he doesn't fight me on the medications that I take. Of course, I guess we'll see if that holds true with the Fosamax. My previous Dr said I am a "difficult" patient to treat because of all of my different issues. I think she was glad when she ended up being out-of-network for me years ago. I just wish there was one Dr that was capable of looking at everything and guiding me. Sorry for the long reply.

[FearFracture]

You might want to look into the Marodyne LiV (low intensity vibration) plate and red light therapy. I don’t use either, but from what I have read, I would be willing to try them both—these non-drug therapies sound very promising.

[Tlflom]

There is a big difference between K1 and K2.

K1 promotes coagulation. Bad for your condition.

K2 moves minerals from soft tissue to bone. This is the one you want.