Anyone done Fosamax and then tried Bo... - Osteoporosis Support

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Anyone done Fosamax and then tried Boniva?

Raleigh59 profile image
13 Replies

My B/C B/S insurance is making me try those in that order.

So happy - just took my last 5 mg fosamax left in my bottle, it gives me a stomachs ache every time.

Boniva only comes in a 30 day in one pill supply. I am scared of taking that kind of dose.

I can try actonel but I would have to pay for that myself. $14 a week.

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Raleigh59 profile image
Raleigh59
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13 Replies
Kingsdaughter1 profile image
Kingsdaughter1

I never used Fosamax and Boniva gave me chest pains but I did use actonel/Atelvia with no problems.

Raleigh59 profile image
Raleigh59 in reply toKingsdaughter1

how long did you use it for

Kingsdaughter1 profile image
Kingsdaughter1 in reply toRaleigh59

I used it many years ago for a period of 2-3 years. Several years later, I had deterioration and went back on it for two more years. Two of my scores stayed in osteopenia but my spine has dropped down to a -3.3. So we are looking at Forteo but it is too costly for me so asking the doctor to look into the generic form as it is about half the price at $130 monthly, with insurance coverage!

Jemi7266 profile image
Jemi7266 in reply toKingsdaughter1

I used Forteo for 2 yrs and my BMD improved significantly. Lilly Cares Foundation has a patience assistance program that will pay for the full cost of Forteo. Here is the link.

lillycares.com/

Best wishes

Kingsdaughter1 profile image
Kingsdaughter1 in reply toJemi7266

Thank you for the info Jemi7266. Unfortunately I had looked into them but I am not eligible because my income is considered too high . What they don’t realize is that I have two other meds that I take for Parkinson’s Disease that are also thousands of dollars monthly. It is frustrating.

Jemi7266 profile image
Jemi7266 in reply toKingsdaughter1

I am so sorry.

Raleigh59 profile image
Raleigh59 in reply toJemi7266

yes I applied for it and I got the numbers / info to use it . But my doctor would have to write a prescription for it. Is this the daily self administered shots? Did you take bisphosphonates before that ? My insurance says I have to do the step process of starting with fosamax but I don’t know if there is an exceptions / prior authorization form to do for forteo ?

Did you try the oral bisphosphonates first?

Jemi7266 profile image
Jemi7266 in reply toRaleigh59

yes, it’s for the daily self administered Forteo injections. I’m not sure that it comes an any other form.

I tired Fosamax for a couple of weeks and I had horrible leg & back pain.

I don’t recall the my insurance required that I use other osteoporosis meds.

I was qualified for the Patient Assistance program and the program did require to get a prior authorization from my insurance. The insurance denied my request, so the Patient Assistance Program covered Forteo, plus supplies at 100% for 2 yrs.

They would ship me the injections and supplies to my home.

I used Forteo, from 2016 to 2018. I went from osteoporosis to osteopenia in my lumbar, but remained osteoporosis in my femur, but I did gain significant BMD in both lumbar & femur.

I’ve been using Prolia injection every 6 months since 2019 and was maintaining most of my BMD gain from the use of Forteo. However in the last 2 yrs, my labs show that the effectiveness of Prolia seems to wear off about 3-4 months after receiving the injection.

My endocrinologist suggested that I take Reclast, but I refused. Instead I intend to go back to using Forteo injections for 1 yr, which is now approved by the FDA.

Smittybear7 profile image
Smittybear7 in reply toJemi7266

Did you have any side effects from Forteo? Did you have to start with Foxamax?

christy81256 profile image
christy81256

I have been taking Boniva for several years now. It used to give me a little tummy issue about 2 weeks after. Just an upset tummy. Nothing serious. Then that was it after several months it quit. I still take it at my Dr insistence. My osteo has gotten a tiny bit better in my hip only. Everything else is stable. I am now on Medicare Advantage plan. It’s covered at 100%.

Raleigh59 profile image
Raleigh59 in reply tochristy81256

do you take the monthly pill

christy81256 profile image
christy81256 in reply toRaleigh59

yes that’s how it comes. Monthly.

Raleigh59 profile image
Raleigh59

For those following my saga. I tried Boniva and got extreme abdominal pain and extreme gas. I will not be doing it again. Compared to Fosamax, Boniva is worse for me. I just picked up risendronate . I am trying it tomorrow.

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