New to this group and looking to learn - Osteoporosis Support

Osteoporosis Support

4,630 members885 posts

New to this group and looking to learn

ksblack519 profile image
11 Replies

I was diagnosed with osteoporosis this summer (-2.5), and I was disappointed to see that number. It was my third DEXA scan over the last 10 years following removal of my thyroid for thyroid cancer and subsequent thyroid replacement therapy, and I've watched a continuing decrease in bone density in spite of taking calcium and exercising. It is believed that my bone loss can be attributed to the thyroid medication over the past 18 years which was kept at high levels to avoid recurrence of cancer. I am 58. I would like to follow a more natural treatment route for now so I've increased my supplements by taking a bone builder with calcium, magnesium, K, and D along with halting all caffeine and alcohol which, honestly, is more difficult than I wish to admit because I enjoy both. I've exercised all my life with running, aerobics, Pilates, etc., but have now significantly increased weight training. I am looking forward to reading about other's journeys. I am grateful for this community's presence.

Written by
ksblack519 profile image
ksblack519
To view profiles and participate in discussions please or .
Read more about...
11 Replies
HeronNS profile image
HeronNS

Sounds like you have been working hard to improve your health. How much Vitamin K2 is in your supplement?

ksblack519 profile image
ksblack519 in reply toHeronNS

I’m taking Thorne 3-K Complete supplement which has 6090 mcg per capsule of K2 as MK-4 and MK-7 and just a bit of K1.

HeronNS profile image
HeronNS in reply toksblack519

I don't really understand that measurement, as mk 4 and mk 7 are very different, the first usually measured in mg and the other in mcg, but it sounds like you're getting enough! Usually we don't need K1 supplements as it's in our food. My supplement is 100 mcg mk-7 twice a day. Presumably, as you have other, longstanding issues, your parathyroid function (which has nothing to do with the thyroid except its position in the bbody) has been checked?

ksblack519 profile image
ksblack519 in reply toHeronNS

You are right about the mk4 and mk7 differences. In my supplement the breakdown is 5 mg of mk4 and 90 mcg of mk7 a day - the total vitamin K is 6,090 mcg - how they got to that, I don't know! Anyway, I appreciate your comments. I have not had my parathyroid checked in a long time and I will inquire about that. Thanks!

I've just been diagnosed and have been on thyroid meds for at least 12 years. I've been trying to figure out why I have this condition as I have been a jogger for 30 years and lifted weights 3 times a week for the last 15 years. I thought I was healthy! It has to be the thyroid medication. I am beyond scared. I'm trying to get in with a rheumatologist right away but now every time I take my thyroid meds, I feel like I'm killing myself! I wonder if there's any other way to regulate my thyroid.

ksblack519 profile image
ksblack519 in reply to

It could be the thyroid medicine. From what I understand, it depends on the level of medication. My TSH was kept at an over-suppressed level by giving me a higher dose of replacement in order to keep any potential cancer from coming back. Apparently that philosophy of treatment has changed now, but likely for me the damage was done. Now I am trying to reverse it with an "appropriate" thyroid dose. Hopefully you can learn if your TSH level is in the correct range. Seeing an endocrinologist will give you the best focus on your thyroid.

FearFracture profile image
FearFracture in reply to

I have hypothyriodism and have been taking 75 mcg of levothyroxine daily since 2017 and in 2019 I was diagnosed with osteoporosis. I've always had an active lifestyle, healthy weight, and good diet. Recently, I've started doing a good amount of research on diet and exercise to see what I can do to improve my bones.

A few weeks ago there was an online osteoporosis forum. One of the speakers a was Dr. Terry Wahls. Dr. Wahls was extremely healthy, ate a vegetarian diet, and during medical school, when they did DEXA scans she had above average bone density.

Then she was diagnosed with MS, ended up in a wheelchair, and the outlook was not good. She started doing her own research and by tweaking her diet, a lot--she now eats meat--she has been able to halt her MS. She no longer needs a wheelchair and she's even done a 30 mile bike ride.

I'm reading her book, The Wahls Protocol. One thing she talks about is adding seaweed to your diet and she specifically states that if you have a thyroid issue, you need to discuss adding seaweed to your diet with your doctor because they will need to watch your thyroid levels and possibly reduce your meds. I haven't added seaweed to my diet yet but I do intend to ask my endocrinologist about this.

ksblack519 profile image
ksblack519 in reply toFearFracture

Thanks for the resource! It must be something with the iodine in seaweed, I would think, but I'll look into it as well.

Pte82 profile image
Pte82

ksblack519, look into adding boron and delta tocotrienol for your osteoporosis.

ksblack519 profile image
ksblack519 in reply toPte82

Thanks Pte82! I am aware of boron but am not familiar with the delta tocotrienol - I'll definitely look into that.

Pte82 profile image
Pte82 in reply toksblack519

ksblack519, these links provide additional info about them, take note of the relation between tocotrienol and tocopherols.

todaysgeriatricmedicine.com...

ncbi.nlm.nih.gov/pmc/articl...

Not what you're looking for?

You may also like...

New to the group

Hi there, I'm touched by how hard some of you are struggling with osteoporosis and it's a little...

New to this...

Hi all. This site seems to be a great resource of information. My head is swirling with the...
Astagirl profile image

Better than a DEXA?

I am in my 2-year period of grace given by my MD before taking something for my osteopenia which...

Dexa results

Hello dear community. I'm 36 yo, I've been diagnosed with Osteopenia 4 years ago. After giving...
Bella33355 profile image

Confused

After having a compressed fracture L2 six weeks ago without a reason I got a Dexa Scan my results...
Daisi124 profile image

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.