OH MY ;): hi guys thinking of you all n wondering how... - NRAS

NRAS

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OH MY ;)

alibonura profile image
17 Replies

hi guys

thinking of you all n wondering how each n everyone of you are feeling

well i just wanted to share with you all n tell you that im feeling so good ive even sorted the spare room out :) im like yayyyyyyyy, long may it continue, Im high on Enbrel lolllll xx

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alibonura profile image
alibonura
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17 Replies
kayelizabeth profile image
kayelizabeth

have gone downhill the last 2 weeks, feet are so painful i feel like they dont belong to me if that makes sense, hands are stiff and painful blisters appearing all over my body, seems mtx doesnt work for me ;((((((((

sylvi profile image
sylvi in reply tokayelizabeth

Hugs your way.xxx

allanah profile image
allanah in reply tokayelizabeth

Give the Rheumies a ring, they should be able to help. hugs xx

That's wonderful news Alibonura! And sorry about yourself Kayelizabeth. Tilda x

Munchkinella profile image
Munchkinella

So pleased for you Ali :-) you go girl! Long may it continue.

Love Janet xxx

Munchkinella profile image
Munchkinella in reply toMunchkinella

Not good Kayelizabeth :-( sorry to hear this. Sending many gentle hugs. Love Janet xxx

cathie profile image
cathie

Glad to read the positives. Less the not so. I'm reaching the end of Paris trip and have managed to do most of what I wanted without steroids. Stiff after 4 hour dinner with sister in law in cafe though! And rough night after late night decaf which I suspect wasn't.

Hope you all have an easy weekend

sylvi profile image
sylvi in reply tocathie

Hope your having a good time.xx

dtech profile image
dtech

Asking for decaff in France is like trying to get a vegetarian meal:-)

Good morning :) Wonderful news :) I'm really happy for you!! Long may the Enbrel high continue :D !!

Love, Christine xx

Good news re enbrel x

sylvi profile image
sylvi

If your that good do you want to come and sort some of my stuff out as well. Anyway joking aside i am pleased for you.xxx

Sailaway profile image
Sailaway

I'm over the moon for you!! I guess cleaning's never been so rewarding? I hope you just get better and better, and that you remain free of the restrictions of RA x

allanah profile image
allanah

When you are finished yours and sylvies can u add me to the list lol! Great news,god bless Enbrel! Xx

petalnumber2 profile image
petalnumber2

Mine too, after your own, sylvie's and allanah's if you have enough energy left Ali !!

Brilliant news, it must be feeling like the clock is being turned back :-)

Can't wait to get started on enbrel myself..........

lorann profile image
lorann

Well, I am right there with you!! I am so happy and excited, as many here know, my French Knight in Shining Armor has been in London for 6 months aND WILL ARRIVE HERE sATURDAY BEFORE eASTER :_) hATE WHEN i HIT THE CAPS LOCK, IT'S MY BUM SHOULDER, KEEPS ME FROM REACHING THAT END OF THE KEYBOARD. aNYWAY, ROBERT WILL BE HERE FOR eASTER, AND WILL STAY UNTIL MY SHOULDER SURGERY ON aPRIL 8, THEN HE WILL STAY WITH ME AND TAKE CARE OF ME UNTIL HE FEELS i'M STRONG ENOUGH FOR HIM TO GO HOME. iS HE A SAINT OR JUST CLOSE TO IT? i HATE TO HAVE TO DO THIS, AM REALLY THINKING OF POSTPONING THE SURGERY... tHERE ARE OTHER THINGS WE COULD DO BESIDES SITTING AROUND, SIPPING TEA AND COFFEE AND CHOMPING SCONES :)

lORET

Neonkitty profile image
Neonkitty

Ali, wonderful news! Long may it continue! ;-)

Kayelizabeth - so sorry you are having a rough time. ;-(. Hope for better days very very soon. Blisters sounding awful, poor you :-( xx

Cathie - you have been very adventurous with Paris. I went mid September and it was hard with things like ridiculously high transfer from departure gate to plane bus platform (which I had to be lifted up onto as too high to lift my knees up) and stupid suburban platform which the train left a gap of ten to twelve inches, which I had to be lifted up and into again ....why oh why do they not realise this is not easy for many people?) but in the centre of Paris, things were fine and on the central Metro. Just a long slog and little sleep. There is always the temptation to do too much when in a big city then feel afterwards a big ouch!)

Neon kitty xx

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