sorry haven't posted in a while! little update, firstly thanks for all the tips about sleeping been getting better nights sleep with a lighter weight duvet and some nights just putting a pillow under my knee. Also have been crazy busy with school work at the moment.
I've got a appointment with my consultant really soon and we are going to discuss going back in to hospital for steroids again, little but nervous as i don't like hospitals but i find steroids very effective. my wrists are especially bad at the moment and my mum is having to dry my hair as i find the hair dryer to heavy and hard to lift it and reach the back of my head..its little things like this that really get me down not being able to do all the things my friends can..hoping seeing my consultant will help improve my wrists.
i will let you all know how it goes