Feeling down today.

[ellybw]

Have had a bad day today.

Boys have played up all day, moaning, arguing from them all and full blown tantrums from the 2 year old. All whilst my husband slept after doing a night shift last night. All very teary and tired. They must know it's back to school for them tomorrow.

My mood is low, just the general fatigue, a bad night's sleep last night, and aches and pain in my fingers and wrists today that brought tears to my eyes as I was chopping the veges for dinner.

Saw doctor on Tuesday and had a sneaky peak at letter from consultant, that said RF and CRP still borderline positive and Early Rheumatoid and Fibro! Leukocytes in my urine but apparently nothing to worry about!?

Doctor has signed me off for a month (would have done two but I said I would return in a month). So pleased, as just can't stand the thought of work at the moment. It got to a point before half term where I was stopping on my way home as the pain in my feet was so bad. Hoping she'll do the extra month when I see her next and then that will take me to my next appointment with the consultant.

When hubby woke up, he obviously could see that I was upset and so dropped a bit of a surprise on me. In six weeks we celebrate 10 years of marriage and he is whisking me off to Spain for three nights - just the two of us! Am so excited - though I am the world's worst flier, but he knows that!!

Elly x

[Hidden]

Hi Elly. Sorry you are feeling down. I found the stage pre-diagnosis was the worst of all. At least you blood markers are suggesting early RA and hopefully the will want to catch you early and then your fortunes will change as mine have.

I also have 3 sons but they are a lot older than yours. The eldest turns 21 in about ten days, middle boy turns 18 in May and youngest turns 16 in mid March. Hard work at your stage but everything you put in now rewards you in the years to come. Good luck getting a diagnosis and treatment. Tilda x

[Dotty7]

Poor you I'm glad the doctor has signed you off for a goodly amount of time, but probably good to see her monthly so that you can discuss how you're feeling. Get a good rest while the kids are in school: sleep is absolutely the best thing. It won't cure you but you will feel better for it.

Remember you are allowed to see the consultant's reports, so you don't have to sneak a look at them. I used to peer at them and speed read, then I discovered that they aren't confidential!

Fab husband to have booked a lovely treat

Take care,

Dotty xx

[Hidden]

hi a month is realsitic.. I was off six weeks when first ill and just had six weeks off over two years later due to medication failing.

[sylvi]

Well done to that lovely husband of yours who wasn't going to tell you yet about his surprise,but seeing that you are suffering so much he gave you your surprise. These men like yours and mine are really exceptional men who know their wifes very well and will do anything to help them with their ra/fobro.

There is nothing wrong with having a look at your records asa it is about you after all. Like has been said before now your children are back at school this week you can rest a bit. See your gp if your still suffering and see what they say about your health and see if they can tweek your meds.

You rest now as much as you can and i will send you some warm hugs.xxx

[Sue8]

Hi, so are you not on any medication yet? you don't have to have the RF to have rheumatoid I haven't, I am seronegative RA but all the symptoms are the same. I was only diagnoses last Oct after years of going with pains to doc's. I was diagnosed with PMR a year ago and put on long term steroids last June for that. But now I don't know which pain belongs to which illness lol. My neck is swollen at the moment and people think it's the steroids but I know it's not or it would be like it all the time. The muscles stand out very prominent especially on the right and my shoulder hurts, again dunno if it's the RA or PMR. I am on MTX for the RA but it's not working. I see my rheumy in 2 weeks to see what's next..

I too have a fab hubby who sees when I am in pain and takes over or shouts for one of the older kids to come and help. I say kids, the ones still at home are 20, 18, 14 & 7 lol.

I hope the time off work gives you some respite.

Take care

Sue

[ellybw]

Thanks for the replies, have got the big two back to school this morning after another restless night. Little one (2) is home with me today but is currently watching Peppa Pig and cuddling mummy. Am determined to be productive with my time off, as much as pain will allow, and so have a trip to B+Q planned for later in the day! (fun). Tomorrow I am treating myself to having my nails done, as little one will be at nursery too, so have a day to myself.

I am not on any meds for the RA Sue8, just NSAID's which do help a bit. I see the consultant again in a couple months, so will hopefully find out more then.

Thanks again, it's always nice to know there are people here, who read and respond!!

XXX

[cazh]

Hi, sorry you're not feeling great at mo. At start when I was just on anti inflamms, I felt pretty dreadful, luckily only work part time and children much older, so managed to struggle in to work. Otherwise I definitely wouldn't have been able to work. Try to rest as much as poss(obviously not easy with little ones). Glad you have lovely trip to look forward to. Once your meds are sorted, am sure you will feel much better. I've been on methotrexate since may and the difference is amazing. Good luck.

Caroline.

[allanah]

Phew thank goodness the school hols are over for another few weeks!!! I remember them well and they were very tiring. But it sounds like you are more positive today! Hang on in there as the others say once you get over this awful limbo stage you should start to feel better again. Good idea to have a treat day as after last week you deserve it , hugs xxxx